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Support Network for Children’s Healthcare Challenges

A comprehensive resource for families dealing with cleft lip and palate issues, offering coping strategies, advocacy tips, and ongoing support for medical, education, social, and insurance challenges. Learn about essential resources and connect with a supportive network.

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Support Network for Children’s Healthcare Challenges

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  1. Lisa Pleasants-Smith From a Family Perspective Children’s Healthcare of Atlanta 17th Annual Cleft Lip and Palate Symposium July 22, 2004 www.friendlyfaces.org

  2. Lisa Pleasants-Smith A resource for, and network of, individuals with facial differences, parents, families, friends, and healthcare professionals www.friendlyfaces.org

  3. Lisa Pleasants-Smith www.friendlyfaces.org

  4. Lisa Pleasants-Smith www.friendlyfaces.org

  5. Lisa Pleasants-Smith www.friendlyfaces.org

  6. Lisa Pleasants-Smith NICU Coping Strategies 1. Acquiring information 2. Gaining Control (bonding) 3. Social Comparison www.friendlyfaces.org

  7. Lisa Pleasants-Smith Early Intervention 1. Craniofacial Team 2. Audiology 3. Babies Can’t Wait, CMS, Georgia PINES www.friendlyfaces.org

  8. Lisa Pleasants-Smith Advocacy Begins Proactive Parenting 1. Self-Education/Research 2. Networking www.friendlyfaces.org

  9. Lisa Pleasants-Smith Ongoing Challenges Health/Medical Issues 1. Airway Management 2. Nutrition 3. Hearing 4. Craniofacial Surgery 5. Dental 6. Ophthalmology 7. Speech Therapy (Oral Motor and Articulation) 8. Home Health Nursing www.friendlyfaces.org

  10. Lisa Pleasants-Smith Ongoing Challenges Education Issues 1. Preparation for Individualized Education Plans 2. Special Education/Hearing Impairment Program Options • Oral/Speech • American Sign Language (ASL) • Total Communication (Oral and ASL) 3. Assistive Technology www.friendlyfaces.org

  11. Lisa Pleasants-Smith Ongoing Challenges Social/Psychological Issues www.friendlyfaces.org

  12. Lisa Pleasants-Smith Ongoing Challenges Health Insurance 1. Deeming Waiver 2. Health Insurance Premium Plan (HIPP) 3. Babies Can’t Wait 4. CMS 5. Medicaid Waivers www.friendlyfaces.org

  13. Lisa Pleasants-Smith Ongoing Challenges Stress 1. Chronic 2. Affects Entire Family 3. Intervention—Counseling, Support Groups www.friendlyfaces.org

  14. Lisa Pleasants-Smith Support 1. Continuing Education • Internet • Journal Articles and Books 2. Parent-to-Parent Networking • Parent to Parent of Georgia • Families of Children Under Stress (FOCUS) • Mothers United for Moral Support (MUMS) • Condition-Specific Listservs (e.g. Yahoo! Groups) www.friendlyfaces.org

  15. Lisa Pleasants-Smith Essential Resources • Charkins, H. (1996) Children with Facial Difference: A Parent's Guide. Bethesda: Woodbine House. • The Resource Guide for People with Disabilities and their Families in Georgia published by the Governor's Council on Developmental Disabilities. Call 404-657-2126 for a copy. • Families Of Children Under Stress (FOCUS) 3050 Presidential Drive, Suite 114, Atlanta, Georgia 30340 Phone: 770-234-9111 Web site: www.focus-ga.org www.friendlyfaces.org

  16. Lisa Pleasants-Smith Thank You! www.friendlyfaces.org

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