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Development of the Partnerships in Dementia Care (PiDC) Alliance

Development of the Partnerships in Dementia Care (PiDC) Alliance. Carrie McAiney, Sherry Dupuis, Karen Ray, Amy Go, and the Partnerships in Dementia Care (PiDC) Alliance Sunday March 27, 2011 Alzheimer Disease International Conference. Growing Concerns about LTC Culture.

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Development of the Partnerships in Dementia Care (PiDC) Alliance

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  1. Development of the Partnerships in Dementia Care (PiDC) Alliance Carrie McAiney, Sherry Dupuis, Karen Ray, Amy Go, and the Partnerships in Dementia Care (PiDC) Alliance Sunday March 27, 2011 Alzheimer Disease International Conference

  2. Growing Concerns about LTC Culture • Hierarchical organisational structure • Predominance of acute, medical model of care • Unidirectional, provider-as-expert approaches • Program-centred rather than person-centred • Reliance on outcome measures irrelevant to effective care decisions • Exclusion of those directly involved in care and support in decision-making (i.e., persons with dementia, family members, front-line staff)

  3. Calls for Culture Change Reflective of…. • Strong bi-directional relationships at the core and a focus on relationship-building • Direct, active and meaningful involvement in planning and decision-making by all • Empowering, humanistic approaches to care that are person-centred rather than program centred • Processes that enhance capacity building for all

  4. Moving the Agenda Forward… • Ontario Alzheimer Strategy (1999-2004) • Alzheimer Strategy Transition Project (2005-2007) • ADRD Planning Framework and Tool-kit introduced (2006) • Requests from LTC organisations to put framework into practice • MAREP implementing and examining different partnership approaches in practice (2002-2011) • A Changing Melody • By Us For Us Project • Dementia Diagnosis Resource Kit Project • 2008 introduced authentic partnership model • 2010 Received SSHRC CURA grant

  5. Guiding Theoretical Frameworks • Alzheimer’s Disease and Related Dementias (ADRD) Planning Framework • Relationship-Centred Care and Authentic Partnership Approaches • Appreciative Inquiry • Participatory Action Knowledge Translation (PAKT) Model

  6. To facilitate sustainable LTC culture change reflective of a relationship-centred/partnership approach in order to enhance the care experience for persons living with ADRD, their family care partners, and staff working in dementia care Overall Goal

  7. To guide our process we… • Make decisions together • Create a liveable space where all can thrive • Value and integrate our collective abilities & gifts • Respect the welfare of others • Are accountable • Focus on the process • In partnership, we strive to… • Enhance the care experience for persons with dementia, family members & staff • Appreciate & build on our strengths to build capacity Establish & maintain open communication We appreciate & work to... Connect & commit to each other Value diverse perspectives Create a safe space Discover ‘the best of what is’ • Our Focus is…. • An Informed Society • Enabling & Supportive Environments • Personal, Social & System Connectedness Deliver ‘what will be’ Dream ‘what might be’ Conduct regular reflection & dialogue Design ‘what should be’ Culture Change Process Guiding Principles Culture Change Outcomes

  8. PiDC Governance Structure Partners of the PiDC Alliance Research Management Team Culture Change Coalitions Knowledge Broker and Knowledge Mobilization Team Culture Change Learnings, Tools & Resources

  9. For more information contact: Sherry L. Dupuis, Ph.D. Murray Alzheimer Research and Education Program (MAREP) University of Waterloo sldupuis@uwaterloo.ca or Carrie McAiney, Ph.D. Dept. of Psychiatry & Behavioural Neurosciences McMaster University mcaineyc@mcmaster.ca

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