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Empowering Lives: Post-Diagnostic Support for Early-Stage Dementia in East Renfrewshire

The Facing Dementia Together project aims to support and empower individuals with early-stage dementia and their families in East Renfrewshire. By connecting them with vital resources and helping them articulate their hopes, dreams, and aspirations, the initiative fosters a sense of control over their lives. Through personalized support and community engagement, individuals are equipped to manage their challenges, improve mental well-being, and ultimately lead fuller lives. The project addresses the significant need for effective post-diagnostic assistance, ensuring individuals feel informed, supported, and connected.

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Empowering Lives: Post-Diagnostic Support for Early-Stage Dementia in East Renfrewshire

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  1. Facing Dementia Together Post-Diagnostic Pilot in East Renfrewshire and Renfrewshire

  2. Aim of project • To support, enable and empower people with early stage dementia and their families/supporters to take control of their own lives and to connect their hopes, dreams and aspirations, with the supports they need, in order to have the life they want now and in the future.

  3. Background to the project • Changing Lives: report of the 21st century social work review, Scottish Executive, 2006 • National guidance on self-directed support, Scottish Government, 2007 • Widespread lack of post-diagnostic support • Personalisation: an agreed understanding, Changing Lives Service Development Group, 2007

  4. Referral criteria • Diagnosis of early stage dementia in last six months • All ages • All types of dementia • Renfrewshire/East Renfrewshire • PWD wants post-diagnostic support

  5. Community Self Directed Support choice Person Centred Planning Information Signposting Support

  6. Monitoring & evaluation • Dementia Services Development Centre (DSDC), Stirling University • Interview sample (n=20) and comparative group (n=20) • Pre/post interviews • Interviews with key stakeholders and staff • Recommendations for continuation strategy

  7. Intended outcomes • Better informed • Skills to manage challenges of living with dementia • Lead full and active lives • Legal & financial arrangements in place • In control of support now and in future • Increased confidence, self-esteem, reduced feelings of isolation, improved mental well-being

  8. Key challenges • Limited financial resources & lack of systems/structures to support SDS • Understanding & acceptance of diagnosis and it’s impact • Planning ahead • Natural supports already eroding • Resistance to help • Additional support needs • PWD needs Vs carer needs

  9. Ideal post-diagnostic support • Opportunities for follow up • One key contact • Responsive to differing needs of PWD and carers at different points in time • Timely & accessible information • Advise on practical matters • Opportunities for appropriate peer support • Access to counselling

  10. Contact Tracy Gilmour Post-Diagnostic Practice Manager Alzheimer Scotland @ Undercover 56 Kelburn Street Barrhead G78 1LR Phone: 0141 876 9523 Email: tgilmour@alzscot.org

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