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Who are we?

Who are we?. The Bone Cancer Awareness Trust was set up by the family and friends of Luke Bradwell, who passed away on the 3rd January 2012 after a valiant fight with Osteosarcoma. What is our aim?.

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Who are we?

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  1. Who are we? The Bone Cancer Awareness Trust was set up by the family and friends of Luke Bradwell, who passed away on the 3rd January 2012 after a valiant fight with Osteosarcoma.

  2. What is our aim? We aim to raise awareness of bone cancer to promote early diagnosis, as this is one of the most important factors influencing outcome.

  3. Why is this important? As a family we had never heard of Osteosarcoma until Luke was diagnosed and through our experience have learnt that unfortunately this is also the case for many other families and patients affected by primary bone cancer.

  4. What did we do? We spoke to BCRT and agreed to work together towards a common aim. We also consulted oncology specialists and NICE. Late diagnosis we realised was not uncommon.

  5. How do we raise awareness? After consultation we decided to provide information to GP surgeries and schools. We have produced an information leaflet for distribution to GP surgeries. We hope increased awareness will encourage individuals to seek medical attention sooner, as we believe early diagnosis can save limbs and lives.

  6. How will this help? The intention is that anyone with symptoms, their families or first contact medical professionals will be exposed to the information and consideration will be given to an X-ray.

  7. What have we achieved? In our first year we have run a pilot scheme in co-operation with the Cornwall County Council Department of Public Health. Our information leaflets have been distributed to all GP surgeries and Minor Injury Units within the PCT.

  8. How did we do this? Consultation with key staff within the PCT Production and distribution Agreement with PCT and partner charities regarding content

  9. What’s next? • With the help of BCRT, recruit volunteers to promote the campaign locally • Roll out of the Cornwall pilot into a national programme • Continue to seek opportunities to promote awareness in schools

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