A National Technical Assistance System for EHDI Programs

1. A National Technical Assistance System for EHDI Programs

2. Number of Hospitals Doing Universal Newborn Hearing Screening Number of Programs

3. . . 3 Status of Universal Newborn Hearing Screening in the United States Percentage of Births Screened 90%+ 51 - 90% 21 - 50% 1 - 20%

4. Tremendous Progress During the Last Decade • Less than 30 hospitals with UNHS in 1993; compared with almost 1400 in May of 2000 • 2 million babies are screened every year prior to discharge • 33 states have passed newborn hearing screening legislation • The federal government is providing financial support to encourage expansion

5. The Other Side of the Coin . . . . • 2,800 hospitals are not yet screening for hearing loss • 2 million babies are NOT screened every year prior to discharge • Many states which have passed legislation have not yet implemented it completely • Only 9 states (accounting for 7% of the births) have implemented reasonable state-wide programs

6. Status of EHDI Programs in the United States • Universal Newborn Hearing Screening • Effective Tracking and Follow-up as a part of the Public Health System • Appropriate and Timely Diagnosis of the Hearing Loss • Prompt Enrollment in Appropriate Early Intervention • A Medical Home for all Newborns • Culturally Competent Family Support • Elimination of geographic and financial barriers to service access

7. Efforts by the Federal Government toPromote Early Identification of Hearing Loss • Federal funding for research and program development • NIH Consensus Development Conference in 1993 • Consortium for Universal Newborn Hearing Screening funded in 1993 • Marion Downs National Center for Infant Hearing Established in 1996 • National EHDI Technical Assistance System Established in 2000

8. Goal of the National EHDI Technical Assistance System • Every child born with a hearing loss will be identified before 3 months of age and provided with timely and appropriate early intervention before 6 months of age • Every family of an infant with hearing loss will receive culturally competent family support as desired • All newborns will have a medical home • State will have tracking and data management systems which are linked to appropriate public health information systems

9. National EHDI Technical Assistance System • EHDI Network members located in each of ten geographic regions

10. National EHDI Assistance Network Region VIII (91% currently born in UNHS hospitals) Terry Foust Region V (26% currently born in UNHS hospitals) Karen Munoz Region II (16% currently born in UNHS hospitals) Beth Prieve I Puerto Rico Virgin Islands Region I (38% currently born in UNHS hospitals) Antonia MaxonB VIII II X V Region X (21% currently born in UNHS hospitals) Curt Whitcomb III VII Region III (49% currently born in UNHS hospitals) Sean Kastetter IX IV VI - Region IX (23% currently born in UNHS hospitals) Randi Winston Yusnita Weirather Guam, American Samoa, Marshall Islands, Palau, No. Mariana Islands, Fed. Micronesia Region IV (46% currently born in UNHS hospitals) Faye McCollister Region VI (38% currently born in UNHS hospitals) Karen Ditty Patti Martin Region VII (33% currently born in UNHS hospitals) Les Schmeltz = indicates the locations of MCHB Regional Offices

11. Examples of Network Activities • Training of Trainers Workshop (October 2000) • Individualized TA with state EHDI programs • NEC*TAS Webcast for Part C Programs • MCHB Grant Assistance Workshop May 2001 • Regional workshops on Diagnostic ABR (planned for Oct 2001)

12. Regional Workshops on Audiological Diagnosis • First year will focus on diagnostic ABR (subsequent years on behavioral techniques and hearing aid fitting) • Online materials for mastery learning prior to workshops • Hands-on small group workshop • Supervised practicum in local area following workshop

13. National EHDI Technical Assistance System (continued) • EHDI Network members located in each of the MCHB regions • Information dissemination and training

14. Support for Program Implementation • Step-by-step Implementation Guide • Distributed by MCHB to all birthing facilities in the US • Down load from the web at www.infanthearing.org • Linked to examples of materials from existing programs

15. Contents of Implementation Guide • Enlisting support • Determining a protocol • Dealing with procedural issues • Communicating with parents, physicians, etc. • Training screeners • Keeping referral rates low • Managing data and follow-up • Financing the program • Reporting • Completing diagnostics • Coordinating with state systems

16. Sound Ideas Newsletter • Published Quarterly • Topical articles, suggestions for program improvement • Upcoming events • Available online or mailed

17. National EHDI Technical Assistance System (continued) • EHDI Network members located in each of the MCHB regions • Information dissemination and training • Web site (www.infanthearing.org)

18. National EHDI Technical Assistance System (continued) • EHDI Network members located in each of the MCHB regions • Information dissemination and training • Web site (www.infanthearing.org) • Collaboration with other groups and agencies

19. National EHDI Technical Assistance System (continued) • Groups actively promoting and assisting with EHDI activities • AG Bell, NCHH, ASHA, AAA, JCIH, AAP, ASDC • Relevant groups whose main focus is elsewhere • MCHB Regional Staff, SKI-HI, NEC*TAS, Early Head Start, 0-3, Family Voices, NCCC, KidsNET, STC, AMCHP, AHEC Collaboration with Other Groups and Agencies