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1. XXXXXXXXXX Workshop: Developing Research in Palliative Care Dr Nancy Preston & Janet Rigby 8th February 2013

2. The purpose of this workshop • Promote the importance of research for staff and service users • Enable staff to learn more about research • Increase awareness of research involving palliative and end of life patients in the North West • Answer any questions you may have about research

3. Palliative Care - WHO • “an approach which improves the quality of life of patients and their families facing life threatening illness, through the prevention, …. assessment and treatment of pain and other problems, physical, psychosocial and spiritual”.

4. End of Life Care • “The definition of the beginning of end of life care is variable according to individual person and professional perspectives. …For some the start may be at the time of diagnosis of a condition which usually carries a poor prognosis…For others it will be at a point when there is a deterioration in a chronic illness and it becomes apparent that the likely prognosis is measured in months or possibly a year or two… Alternatively, it could be an elderly person who is becoming increasingly frail”.

5. Research, clinical Audit and Service Evaluation: What is the difference?

6. How does research happen? • Researchers/clinicians/service users develop an idea • May seek funding • Ethical approval • Access to patients is via clinical staff • Data protection act • Identifying patients seen as part of treatment by NHS

7. What are the objectives of research? Group discussion Please take some time to think about this question, and discuss your thoughts in small groups of 2-3 people Why is research important?

8. Why is it important? For the organisation • Funding • Attracts highly skilled clinicians to the area • More knowledge of treatments and therapies • Advances in healthcare For the service user • Better care for our service users • Opportunity to receive the newest treatments and therapies • Opportunity to contribute to research knowledge

9. What are the barriers to research? Group discussion Again, please take some time to think about these questions, and discuss your thoughts in your group. What are the barriers to research What can we do to help overcome these?

10. Research is a positive experience • Direct gain • Contribute for the future • Therapeutic experience • People don’t mind being asked

11. Recruitment • Only 50% of studies recruit to target (Treweek 2010) • In palliative care studies this is about 30% (Bennett 2010) • We need to improve this

12. Rest of today • To think about our roles in getting involved in research

13. Doctorate in Palliative Care Study for a PhD by distance e-learning With Lancaster University, UK The PhD will enable me to research effective methods of delivering pharmaceutical care to palliative care patients in remote and rural areas. About the PhD The international element of this PhD is really important as we absorb and build on best practice around the world. The aim of the course is to equip people working in palliative, hospice and end of life care to undertake advanced study within their chose field, including clinical work, education, research, management, policy and advocacy. It offers the opportunity to complete a PhD by distance e-learning course work, research and thesis. Who should apply? This course will appeal to a wide range of people working in hospice, palliative care and end of life care. It is not restricted to any one professional group or discipline and is intended to be international in focus - appealing to people working in a variety of settings. http://www.lancs.ac.uk/shm/study/doctoral_study/phd/palliative_care/