Comprehensive Cancer Control Planning Telling New Jersey’s Story

1. Comprehensive Cancer Control PlanningTelling New Jersey’s Story Peg Knight, RN, M.Ed. Executive Director Office of Cancer Control and Prevention New Jersey Dept. of Health & Senior Services

2. History of Comprehensive Cancer Control • Cancer leading health concern of NJ citizens • Need for a more organized and integrated approach to cancer control • DHSS Internal Strategic Planning Team • directed by the Commissioner • identified priority recommendations for cancer control

3. History of Comprehensive Cancer Control • State-wide comprehensive cancer control plan • Executive Order, May 2000 • “Task Force on Prevention, Early Detection and Treatment in NJ” • 2 state-wide educational forums on comprehensive cancer control

4. History of Comprehensive Cancer Control • Established Office of Cancer Control and Prevention • Support Task Force • Task Force Kickoff Meeting Jan. 29, 2001 • 18 month timeline to develop plan

5. Task Force Members • Commissioner of Health & Senior Services • Chair: Arnold Baskies, MD • Vice Chair: Philip Benson • 16 public, Governor appointed members: • Cancer Survivors • Providers of Cancer Treatment and Services • Community-Based Organizations • Academia • Pharmaceutical Industry

6. Centers for Disease Control and Prevention

7. Definition of Comprehensive Cancer Control “an integrated and coordinated approach to reduce cancer incidence, morbidity and mortality through prevention, early detection, treatment, rehabilitation and palliation.”

8. Why Do It? • Heavy and unequal cancer burden • Inadequate infrastructure • Limited resources • Limited data use in decision making • Lack of coordination • One cycle of planning and implementation is insufficient

9. What Works • Organization of organizations • Commitment to planning & implementation • Evidence-based process • Topical subcommittees develop objectives and strategies • Priority-setting process within larger body • Mutual education about issues in cancer control • Focus on what’s feasible to do NOW by US

10. TIMELINE

11. A Framework for Comprehensive Cancer Control • Phase 1 - Setting Optimal Objectives • Phase 2 - Determining Possible Strategies • Phase 3 - Planning Feasible Strategies • Phase 4 - Implementing Effective Strategies

12. Phase 1: Setting Optimal Objectives • Existing data assessed for usefulness • Identify existing Needs & Capacity Assessments (N&CA) at County level • Identify gaps

13. Phase 2: Determining Possible Strategies • ISSUES ADDRESSED • RESEARCH • SURVEILLANCE • EDUCATION • OUTREACH • SCREENING • TREATMENT • PALLIATIVE CARE • EVALUATION/QUALITY WORK GROUPS • BREAST • CERVICAL • PROSTATE • LUNG • COLORECTAL • MELANOMA • ORAL/PHARYNGEAL • OVERARCHING • ACCESS/RESOURCES • ADVOCACY • NUTRITION/PHYSICAL ACTIVITY • PALLIATION • CHILDHOOD CANCERS

14. Work Groups: Composition • Decision Makers • Task Force Members • Members of Respective Task Force Member Organizations • Broader, more comprehensive • Pharmaceutical • Advocacy Groups • Community Organizations • Local Health Departments • Who isn’t here that should be?

15. 4 Stages of Development Develop Issue/Problem Statements Generate Goals and Objectives Select Priorities Develop Implementation Strategies

16. Phase 3: Planning Feasible Strategies

17. Phase 4: Implementing Effective Strategies • Evaluating • Tool: Data

18. Where Are We Now?

19. Press ConferenceJanuary 9, 2003

20. $3,250,000 Budget Allocation to Implement the Plan

21. Public Awareness Campaign • Melanoma • Educational Materials Translation • State-wide Campaign • State-wide Conference

22. Surveillance • Increase BRFSS encounters from 4000 to 10,000 • dissemination of information at the county level • essential for Capacity/Needs Assessment • Cancer Cluster Task Force

23. New Jersey Commission on Cancer Research • Expanded funding to address • Cancer and Aging • Quality of Life • Disparities • Clinical Trial Education Initiative • Informed Consent Workshops

24. Evaluation • Procurement of evaluation services on the Comprehensive Cancer Control Plan as mandated by Executive Order 114 and as indicated by CDC guidelines allowing for biennial reports, monitoring, revising and updating.

25. Infrastructure • Office of Cancer Control and Prevention • directing activities • internal monitoring • funding initiatives • NJCEED • Cancer Registry • capacity/needs assessment • GIS expansion • NCI SEER contract

26. Infrastructure • Health Service Grants through the 25 NJCEED lead agencies • critical for the capacity/needs assessment per CDC guidelines • local cancer coalition building • implementation of the Plan at the community level

27. To be continued...

28. Together We Can Make A Difference Telling New Jersey’s Story

29. THANK YOU!

30. Questions

31. Contact Information Office of Cancer Control and Prevention P.O. Box 369 3635 Quakerbridge Road Trenton, NJ 08625-0369 609-588-7681 609-588-4992 (FAX) peg.knight@doh.state.nj.us www.state.nj.us/health