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Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO): An Update on Innovative Activities

This update highlights the activities of the Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO) project, which aims to develop best practices, guidelines, and recommendations for an ideal cancer surveillance informatics infrastructure. The project focuses on improving data completeness, timeliness, and quality, reducing costs, and providing guidance for the development of standards-based systems for cancer registries. This presentation provides an overview of the project's goals, approach, and ongoing activities.

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Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO): An Update on Innovative Activities

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  1. NPCR – Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO): An Update on Innovative Activities NAACCR Annual Conference June 16, 2009 Sandy Thames Public Health Advisor National Program of Cancer Registries, CDC

  2. Name Change • NPCR-Modeling Electronic Reporting Project (NPCR-MERP) name change needed • To represent expanded activities that include: • Modeling • Analysis and Design • Implementation • New Name: • Advancing E-cancer Reporting and Registry Operations (NPCR-AERRO) • White Paper on NPCR-AERRO: Developing a Cancer Surveillance Informatics Structure in the New E-Health Environment – April 2009 • http://www.cdc.gov/cancer/npcr/npcrpdfs/npcr_aerro_overview.pdf

  3. NPCR-AERRO Develop best practices, guidelines, and recommendations for an ideal cancer surveillance informatics infrastructure Use a collaborative, consensus-building framework to construct a comprehensive model to demonstrate the potential of electronic cancer registry reporting and automated registration

  4. NPCR-AERRO Goals • Improve completeness, timeliness, and quality of data • Reduce costs for registries and data providers significantly over time • Develop a “blueprint” to identify priorities that will make better use of cancer surveillance resources • Provide guidance for development of standards based systems for cancer registries • Improve data exchange between systems through use of industry standards

  5. NPCR-AERRO Approach Modeling:Develop consensus best practice models for automating processes and electronic reporting Analysis and Design:Analyze current technology and infrastructure surrounding registry operations and develop products supporting automation and electronic reporting. Implementation:Coordinate, lead, and support software vendors, hospitals, and state cancer registries pilot testing NPCR-AERRO models and products.

  6. Modeling Activities – Completed Hospital Operations Prepare and Transmit Event Report Receive Batch File Validate Event Report Perform Casefinding and Passive Follow-up Perform Abstracting Validate and Edit Abstracted Data Conduct Active Follow-up Perform Quality Assurance/Quality Improvement Submit Data to CCR and NCDB

  7. Modeling Activities – Completed Central Cancer Registry Prepare and Transmit Event Report Receive Batch File Validate Event Report Perform Patient Linkage Perform Casefinding Audits Perform Quality Assurance/Quality Improvement Perform External Linkage to Improve Data

  8. Modeling Activities – Completed Cancer Control and Data Use Develop Business Use Case and Domain Diagrams Describe benefits of EHR to cancer control Examine short- and long-term data needs types of data used how the data are used data sources challenges to data collection and/or use Identify existing and new knowledge products

  9. Modeling Activities – Current/Future Clinical Care Providers (Physician Offices) Claims Pathology Reporting Process: CAP Cancer Checklists National eHealth Initiatives On-going maintenance

  10. Analysis/Design Activities - Current Hospital: Abstracting Use Case - Evaluate data items that can be pre-populated from Electronic Medical Record (EMR) Data Transmission Standards Webinar with Hospital Cancer Registry Vendors Central Cancer Registry: Discharge Data and Medical Record Disease Index Define reports/timeline for data source submission Define standard naming convention of data source reports Visual Editing

  11. Analysis/Design Activities - Current Cancer Control and Data Use: Map EHR data items to cancer data needs

  12. Analysis/Design Activities - Current E-Health Initiatives: Develop a CSTE Position Statement and Implementation Guide for Cancer Reporting Collaborate with IHE Anatomical Pathology Domain to implement a Pathology Profile in EHR software Collaborate with EHR software vendors through IHE to implement a Clinical Care Reporting Profile

  13. Implementation Activities - Current Electronic Pathology Reporting Project eMaRC Plus (formerly Mapper Plus) Visual Editing Tool HIMSS/IHE: Test implementation of IHE Pathology Profile Test implementation of IHE Retrieve Form for Data Capture (RFD) Consolidated Glossary Tool

  14. NPCR-AERRO Website and CyberView Updated NPCR-AERRO Website New CyberView website provides: Model drill down capability Model Map and list of models for quick access to any level of detail Glossary of Terms and references used in the project http://www.cdc.gov/cancer/npcr/informatics/aerro/

  15. Thank you The findings and conclusions in this presentation are those of the author(s) and do not necessarily represent the views of the Centers for Disease Control and Prevention Sandy Thames 770-488-5689 sthames@cdc.gov

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