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Nothing about us, without us!

Nothing about us, without us!. Including people with dementia Christine Bryden (Boden) DASNI. Self-advocacy by DASNI. Started running in 2000 Approached ADI in 2001 Handed over the relay baton ADI must finish the race. What is our label?. Dementia: out of one’s mind The stereotype:

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Nothing about us, without us!

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  1. Nothing about us, without us! Including people with dementia Christine Bryden (Boden) DASNI

  2. Self-advocacy by DASNI • Started running in 2000 • Approached ADI in 2001 • Handed over the relay baton • ADI must finish the race

  3. What is our label? • Dementia: • out of one’s mind • The stereotype: • someone in the later stages • The myth: • We all can’t speak • We all lack insight

  4. The oppression of stigma • Stereotype and myth leads to stigma • Society can’t see the person within. • Veil of stigma masks our potential and oppresses us

  5. Stigma is a disease of society • We are trapped within a web of stigma that • oppresses us, and • casts a veil across our lives • The greater the stigma • the more likely our “adaptive behavior”

  6. How can we remove the barrier? • Stigma is a barrier • behind which we experience loneliness • We must address the stereotype and myth of dementia • and focus on emotions and spirituality rather than cognition

  7. Our invisibility makes the stigma worse • When we are invisible • you believe that we are all alike • When we become visible • we can seek a cure and treatment. • You can be our ally • believe in our potential, • you need us and we need you.

  8. Run the race for us! • We decline daily • we may not want to or be able to be involved • but we want to be asked • We need your help • Be our ally • value us and give us our dignity and individuality

  9. Nothing about us, without us • Use us as visible representatives of our shared cause. • As we become more visible, the stigma will slowly disappear.

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