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Individuals with Dementia: Long-Term Care Policy Challenges Matthew Baumgart

Individuals with Dementia: Long-Term Care Policy Challenges Matthew Baumgart Senior Director, Public Policy Alzheimer’s Association. Some Basics. Not just a “little memory loss” – and not a normal part of aging.

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Individuals with Dementia: Long-Term Care Policy Challenges Matthew Baumgart

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  1. Individuals with Dementia: Long-Term Care Policy Challenges Matthew Baumgart Senior Director, Public Policy Alzheimer’s Association

  2. Some Basics Not just a “little memory loss” – and not a normal part of aging Progressive disease that destroys brain cells, causing problems with memory, thinking, and behavior Eventually, takes away ability to communicate, move, and swallow Ultimately, fatal

  3. Some Facts 5.2 6th 200,000 Million 1 in 3 2 in 3 Half Americans living with Alzheimer’s disease leading cause of death in America + 85 1 in 9 Americans Aged 65 and Over Don’t Know

  4. Some Arkansas Facts 122% 60,000 81% 20% increase in number of deaths between 2000-2010 Arkansans living with Alzheimer’s disease percentage of 60+ with worsening memory problems have not talked to a health care provider

  5. The Costs 40% of AD life spent in most severe stage $35B Medicaid $107B Medicare $203 19X HIGHER WHY? “the most expensive malady in the U.S.” --Associated Press Billion “exceeding that for heart disease and cancer”--Bloomberg News “skyrocketing at a rate that rarely occurs with a chronic disease” --New York Times $27B $34B Other Out of Pocket in costs to American society of caring for individuals with Alzheimer’s disease

  6. The Caregivers 17.5 172 196 15.4 Thousand Billion Million Million $216.4 $2.4 Billion unpaid caregivers hours of unpaid care Billion value of unpaid care

  7. Living Alone 25% of those in the community 800 31.7% Thousand live alone with worsening memory problems who live alone

  8. If you are talking about long-term care, you are talking about people with dementia. BUT Improving the long-term care system is crucial for people with dementia.

  9. The Policy Challenges • Person-centered care BUT Valuing people with dementia and those who care for them • More home- and community-based services BUT Treating people as Individuals Looking at the world from the Perspective of the person with dementia Change in Per Capita Senior Health Care Spending, 2004-2008 • Less restrictive options BUT A positive Social environment in which the person living with dementia can experience relative well-being Home Care Nursing Home Home Care Nursing Home Seniors without AD/D Seniors with AD/D

  10. Closing Thought If you have a system that is dementia-capable, you have a system that is capable for all.

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