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Region 6 Meeting

Region 6 Meeting. Christian Kuhr MD Regional Councillor. Meeting Agenda. Update from OPTN/UNOS leadership Review and discuss 6 public comment proposals, 2 concept papers

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Region 6 Meeting

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  1. Region 6 Meeting Christian Kuhr MD Regional Councillor

  2. Meeting Agenda • Update from OPTN/UNOS leadership • Review and discuss 6 public comment proposals, 2 concept papers • Your feedback will be shared with the DTAC, Executive, MPSC, Operations and Safety, OPO, Pancreas, and Thoracic Committees • Updates on committee activities: DTAC, Kidney, Liver, Membership and Professional Standards, and Thoracic Committees

  3. Fall 2018 Regional Meeting Date • Fall public comment: August 3 - October 3, 2018 • proposals will go to the Board for review in December • Mark your calendar! Fall region 6 meeting: • Friday September 21 in Portland, OR

  4. Region 6 Meeting Attendance

  5. Regional Business • As councillor, my role is to: • Oversee regional operations • Serve as the region’s representative to the OPTN/UNOS Board of Directors • Share the region’s comments on public comment proposals • To best represent the region, I need to hear from you • Welcome members of the Board of Directors • Warm welcome to new attendees at this meeting!

  6. OPTN/UNOS Volunteer Opportunities • Ongoing: submit interest in committee and Board positions throughout the year • Interested individuals must submit a bio form online • OPTN website Members tab Get Involved • Bio form includes a section to indicate specific committee and Board interest, including the position(s) you are interested in

  7. OPTN/UNOS Volunteer Opportunities The Thoracic Organ Transplantation Committee currently has a vacancy for Region 6 Representative Deadline to submit a Bio form is TODAY!

  8. OPTN/UNOS Committee Vacancies (terms beginning July 2018) • Regional nominating committeeselected primary and secondary representatives for the Transplant Administrators Committee • Committee leadership is reviewing committee rosters, and finalizing for OPTN President-Elect review • Purpose: ensure staffing needs of the committees are met, and expertise needed for project work is represented • President-Elect reviews the membership of all committees • Purpose: goal is for the committee system to represent the community we serve - balance of professions, opinions, race, gender • New committee members will receive notice by early March

  9. Region 6 Leadership Associate Councillor/MPSC representative • Patrick Healey MD, Seattle Children’s Hospital • Term: Associate Councillor: July 1, 2018- June 20, 2020 • Councillor 2020-2022 Councillor beginning July 1, 2018- June 30, 2020 • Susan Orloff MD, Oregon Health and Science University

  10. What is new today? • We want to get even more feedback from you! • All attendees will have an opportunity to submit responses to questions we ask during the meeting • Using an online tool – Poll Everywhere • Your job: text to join our polling • instructions at the tables to help you (blue paper)

  11. New! Electronic Feedback 22333 22333 Step 1: Step 2: unos1 D

  12. Test polling question In 2017, organs were recovered from over 10,000 donors (3.1% increase over 2016) and a total of 34,768 organ transplants (3.4% increase over 2016) were performed. A: True: Yay, that’s awesome! B: True: Yep, great work!

  13. Polling question: How engaged do you feel with UNOS?A) Not engaged B) Limited engagement C) Engaged D) Highly engaged

  14. How did you prepare today to discuss the topics on the agenda? A) Listened to a webinar or read public comment proposal(s) online B) Waited to hear the presentations today

  15. What are we here to do today? • Primary purpose: gather feedback from everyone, which requires your participation! We want you to… • Ask questions • Share your comments • Vote (regional voting members) • Network with colleagues and catch up • Share information and learn from one another

  16. Feedback Opportunities • Your feedback is crucial to the policy development process, and we are going to ask for even more • We want to have a thorough discussion on all proposals • How will we accomplish this? • Answer specific questions the committee wants us to consider • Talk about merits of the proposals • Suggest improvements

  17. Regional Sentiment • Voting is another form of expressing your viewpoint about a proposal, it helps us quantify the feedback • We don’t follow a specific order for voting • Vote on the proposal as is; • Vote on the proposal as is and suggest changes; • Identify changes and then vote • Important that you understand how to express your opinion and what we are voting on vs. following a specific order • Comments and votes are our best effort to communicate regional sentiment

  18. Voting members: new form to complete • Pilot to increase public comment participation and gain more insight into the substance of public comments • 4 proposals: OPTN Strategic Plan, Improving the OPTN/UNOS Committee Structure, Appendix L Revisions, Expedited Organ Placement Concept Paper • Responses will be analyzed by the committees and shared with the Board • Your name will not be shared and comments will not be posted on the OPTN website • Your comments will not be added to the region’s comment posted online • Return to the registration desk by the end of the day

  19. What do we do with your feedback? • The feedback we collect today is communicated to the committees and Board • influences changes to proposals before they are sent to the Board • provides me information to better represent you at the Board meeting • Board looks at all feedback and determines what is best for the OPTN as a whole – considering all viewpoints

  20. Public Comment Opportunities • Contact Regional Representatives • List is located in the meeting booklet and on Transplant Pro: select the community tab, and then “regions” • Submit public comment online • OPTN website: http://optn.transplant.hrsa.gov/governance/public-comment/ • Public comment closes March 23

  21. Regional Meeting Agenda: Non-Discussion • Includes proposals anticipated to be: • less controversial, • minimal impact on the transplant community, and/or • represent a clerical change to clarify policy or remain current with clinical practice • Region was offered an opportunity to request that a proposal(s) be placed on the discussion agenda • Proposals will be voted on today, but not presented or discussed • Proposals presented and discussed during national webinars

  22. Non-Discussion Proposals: VoteYou have the option to abstain from voting if you haven’t reviewed the proposals • Manipulation of Waitlist Priority in the Organ Allocation System through the Escalation of Medical Therapies(Ethics Committee) • Guidance for ABO Subtyping Organ Donors for Blood Groups A and AB (Operations and Safety Committee) • Guidance on Requested Deceased Donor Information (OPO Committee) • Review Board Guidance for Hypertrophic and Restrictive Cardiomyopathy Exception Requests(Thoracic Committee)

  23. Non-Discussion Proposals: VoteYou have the option to abstain from voting if you haven’t reviewed the proposals • Modification of the Lung Transplant Follow-Up Form (TRF) to Better Characterize Longitudinal Change in Lung Function following Transplantation(Thoracic Committee) • Align VCA Transplant Program Membership Requirements with Requirements of Other Solid Organ Transplant Programs(VCA Committee) • Guidance on Optimizing VCA Recovery from Deceased Donors (VCA Committee)

  24. Regional Meeting Materials – online! • Today’s presentations are posted on Transplant Pro • Make sure to review the non-discussion proposals and committee updates not presented today • Histo, OPO, Pediatric, Transplant Administrators, Transplant Coordinators, VCA • Regional meeting materials are also posted on Transplant Pro

  25. Regional and National Data

  26. Deceased Donation 2016-2017U.S.

  27. Deceased Donation 2016-2017Region 6

  28. Deceased Donors by Type and Region2017

  29. Deceased Donors by Type2008-2017Region 6 21%

  30. Deceased Donor Transplants 2014-2017 U.S.

  31. Deceased Donor Transplants 2014-2017 Region 6

  32. Framing the Day • We want feedback from as many attendees as possible • To manage the discussion on each proposal, please limit your comments to new comments, points that haven’t been raised • To be sure your comments and questions are heard, please use microphones

  33. Questions?

  34. Does coming to a regional meeting increase your interest in becoming involved or staying involved in UNOS? A)Yes B) Somewhat C) Neutral D) No

  35. What was your favorite thing about the meeting today? A) Networking with colleagues B) Discussion C) Learning about proposals and OPTN activities D) Other

  36. If you haven’t already, do you plan to submit a public comment on the OPTN website?A) YesB) No

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