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Anita MacDonald

Research Bites. Anita MacDonald. Home Delivery of Dietary Products in PKU and other IMD. Have you ever been given the wrong protein substitute?. Prescriptions. Prescriptions. Have you ever been given the wrong protein substitute?

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Anita MacDonald

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  1. Research Bites Anita MacDonald

  2. Home Delivery of Dietary Products in PKU and other IMD

  3. Have you ever been given the wrong protein substitute? Prescriptions Prescriptions

  4. Have you ever been given the wrong protein substitute? • Have you ever had to wait for more than 7 days to receive your protein substitute? Prescriptions Prescriptions

  5. Have you ever been given the wrong protein substitute? • Have you ever had to wait for more than 7 days to receive your protein substitute? • Do you ever struggle receiving the right amount from your GP? Prescriptions Prescriptions

  6. Have you ever been given the wrong protein substitute? • Have you ever had to wait for more than 7 days to receive your protein substitute? • Do you ever struggle receiving the right amount from your GP? • Do you have to collect your protein substitute from your chemist? Prescriptions Prescriptions

  7. Have you ever been given the wrong protein substitute? • Have you ever had to wait for more than 7 days to receive your protein substitute? • Do you ever struggle receiving the right amount from your GP? • Do you have to collect your protein substitute from your chemist • Do you ever worry about obtaining your protein substitute? Prescriptions Prescriptions

  8. Have you ever been given the wrong protein substitute? • Have you ever had to wait for more than 7 days to receive your protein substitute? • Do you ever struggle receiving the right amount from your GP? • Do you have to collect your protein substitute from your chemist • Do you ever worry about obtaining your protein substitute? Prescriptions Prescriptions

  9. Home delivery service - organise prescriptions - dispense special feeds - home deliver

  10. How did we do the study? • duration: 1 year • 2 groups: control home delivery n=32 n=30

  11. Home delivery service • essential dietary products • specialist training given to home-delivery team • monthly stock levels agreed • organised GP prescriptions • monthly phone checks with patients/parents

  12. Home delivery service • products picked by trained warehouse team • dispensed by pharmacist • delivered to patients/parents home at standard times monthly

  13. What did we compare? • mistakes • delays in receiving products • metabolic control • user satisfaction

  14. Evaluation

  15. Safety 15 p<0.05 p<0.05 12 number of problems 1 1

  16. Delayed receipt of products p<0.05 home delivery control number of problems

  17. Delayed receipt of products • control: 31% waited 1-2 weeks for protein substitutes • problems: - low stock levels - lost prescriptions - lack of product supply - repeated errors

  18. Blood phenylalanine control

  19. User satisfaction 100 100 97 72 63 53 %

  20. pleased with service… made life easier saves time and never run out of products stress free service. Don’t know what we would do without it now…… chemist is a nightmare -home delivery is a far better option

  21. Conclusions Home delivery service of protein substitutes: • safer than conventional system • reliable • possibly associated with better metabolic control • popular

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