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The Data Linkage Programme

The Data Linkage Programme. Put simply we must…. Link more data Link it more often Make it available to customers in a timely fashion Protect ‘Personal Confidential Data’. We’ve already made a start……. We launched our new Data Linkage Service in September. You can already access….

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The Data Linkage Programme

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  1. The Data Linkage Programme

  2. Put simply we must….. • Link more data • Link it more often • Make it available to customers in a timely fashion • Protect ‘Personal Confidential Data’

  3. We’ve already made a start…… We launched our new Data Linkage Service in September

  4. You can already access…. Extracts of pseudonymised data sets that are: • Created by linking data held by the HSCIC • Created by linking data held by the HSCIC to customer data With appropriate Information Governance in place: • Extracts of linked data in identifiable form We can also offer: • Cohort flagging for long term mortality and morbidity follow up • NHS Number tracing and list cleaning

  5. What our customers say “The HSCIC has acted as expert advisor to us in terms of data linkage methodology ….building a robust technical solution and supporting the quality aspect of the overall delivery” “The data linkage team has been very helpful in finding the best way for us to make the data available… whilst maintaining patient confidentiality”

  6. But we are ambitious

  7. Programme Overview • Programme Definition well underway. Base-lined position expected in December • Tranche 1 completed in October • Tranche 2 will complete in summer 2013 • Tranche 3 will complete in 2014

  8. Tranche 2 • Increased number of linked datasets available on a regular basis from April • Increased scope for customers to link their own data to data held by the HSCIC • Improvements to the application process • Primary to secondary care linkage on a regular basis in support of ‘care.data’

  9. Tranche 3 • Move the Data Linkage Service onto the Strategic IT platform • Link by ‘default’ and provide data to customers according to their purpose • Continue to make experience better for customers • Ensure the service has sufficient funding to continue for the long term

  10. Important Partnerships We will also identify and develop key partnerships: • Supporting other national bodies e.g. Clinical Practice Research Datalink (CPRD) • Supporting commissioners e.g. Data Management Information Centres (DMICs)

  11. Why is the Stakeholder Forum Important to us? Understand our customers…. • Hear what's relevant to you • Let you help shape the future • Identify the ‘BIG wins’- Biggest benefits, shortest amount of time • Give you a chance to meet each other

  12. So please listen, challenge and enjoy the day!

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