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Navigating the Challenges of Preterm Birth: A Twin's Journey

This account highlights the heartbreaking journey of a family coping with the premature birth of twins in February 2006. One twin, Claire, tragically passed shortly after birth, while Jonathan faced numerous health challenges in the NICU, including organ failure, hernia surgery, and developmental delays. Their story emphasizes the importance of prenatal care, awareness of risks such as alcohol and drug use, and the profound impact on families. The shared experiences shed light on the resilience required for parents of premature infants and the urgent need for support and understanding.

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Navigating the Challenges of Preterm Birth: A Twin's Journey

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Presentation Transcript

  1. “Preemie’s” Mr. Hudnut

  2. Causes • Alcohol • Drugs • Poor health • Medical conditions • Poor conditions • Trauma • ?

  3. When it happened • Feb. 2006 • Went into labor after OB visit • Twin weighed 1lb. 3 oz. • Died shortly after birth – Claire • Labor was “halted” by use of Magnesium Sulfatefor two weeks • Could not bend – muscle atrophy • Steroid shots (March of Dimes)

  4. Jonathan • 1 lb. 10 oz. • Lost weight – 1lb. 6 oz. • Size of a coke bottle • Wedding ring on his wrist / thigh • Blood pressure cuff – size of adult thumb

  5. Perspective on size 1 week old

  6. Perspective on size 12 days old

  7. Problems we did not have to face • Brain Bleeds • Ducts in the top of the brain / spinal column • Organ failure • Major organ failure (Heart, Kidney, Lung, Intestine) • Eyesight • Developmental delays

  8. Problems we faced • After he came home • Hernia surgery • Cyst in esophogus • Nasal surgery • ADD / ADHD – • He is just “wired” differently • Before he came home • Death of the child - twin • Development of lungs – steroid shots during stopped labor • Breathing • Organ (heart) development • PDA - patent ductusarteriosus • Infections - 3 • Ventilator • CPAP (face mask) • Jaundice – Blue light • Hernia • Jaundice – That is what the blue light is for • Gaining weight – measured in grams • Feeding • Passing the “Car Seat” test • 3 months in NICU

  9. Now

  10. Pictures from a NICU • http://www.clickinmoms.com/blog/world-prematurity-day-photographing-nicu-babies/

  11. What you can do • Avoid getting pregnant before you want to • Pre-natal care • Avoid alcohol and drugs Please donate if possible

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