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Transitioning Pediatric Transplant Patients to Adult Care

Transitioning Pediatric Transplant Patients to Adult Care. Stacy Boyce, MSW. Pediatric Care Vs. Adult Care. Pediatric Care child/family centered parental involvement/ensure compliance multidisciplinary Adult Care patient centered autonomy/independence

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Transitioning Pediatric Transplant Patients to Adult Care

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  1. Transitioning Pediatric Transplant Patients to Adult Care Stacy Boyce, MSW

  2. Pediatric Care Vs. Adult Care Pediatric Care • child/family centered • parental involvement/ensure compliance • multidisciplinary Adult Care • patient centered • autonomy/independence • physician directed (referrals to other specialists)

  3. Transition Planning Process • Transition planning begins at age 14 but can occur sooner • All team members play an important role • Checklists • Benefits • Patient becomes more knowledgeable about medical condition and learns new skills • Patient becomes more independent, confident, and self-sufficient • Adult providers have expertise in caring for adults

  4. Knowledge of Medical Condition • Describe Chronic Illness • Implications of Illness • CKD Surveys • Where to obtain more information • Medical Team • Internet • Transplant Facebook Page

  5. Managing Health Care Needs • Symptom management • Daily care • Learning names and dosages of medications • Medication refills • Scheduling own medical appointments • Meeting with health care providers independently • Identifying adult providers (PMD)

  6. Knowledge of Health Insurance • Learning about insurance benefits and length of coverage • Making calls with parent when there is a question or concern • Applying for other insurance programs (WCRDP) • Re-applying for Social Security benefits • Carrying insurance card(s)

  7. Educational/Vocational Needs • College • Living Situation (dorm life) • Peer pressure (sex, drugs, rock & roll) • Student Health Centers • Pharmacy • Emergency Care/Providers • Work/DVR • Schedules • Medical Documentation (letters)

  8. Advance Care Planning • Advance Medical Directives • Discuss with patients age 18 and who are decisional • Purpose, importance, and benefits • Provide copies to FMLH and other providers • Legal Guardianship • Pursue for patients age 18 and who are non-decisional • Provide legal documents to FMLH and other providers • Resources

  9. Questions?

  10. Contact • Social Worker, Stacy Boyce, MSW can be reached at 414-266-7677, sboyce@chw.org

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