Download
1 / 20
200 likes | 317 Vues
Discover the concept of personalisation in dementia care as articulated by Kate Fearnley, Director of Personalisation at Alzheimer Scotland. This approach emphasizes individual choice and control over care arrangements—enabling people to live their lives without being confined to designated services. Explore how personalisation transforms the delivery of support, the challenges of implementation, and what Alzheimer Scotland does to ensure flexible, person-centered care. Learn how this model aims to create a community where people with dementia can thrive.
E N D
Personalisation – what’s it all about? Kate Fearnley Director of Personalisation
Summary • About personalisation • The vision and the reality • What Alzheimer Scotland is doing • What it means on the Helpline in practice
“ “ assessment of need is no longer about which service a person should be referred to, but about individualising the support “ Care should be co-ordinated by means of ICPs “ Personalisation is driving the shape of all public services ” ” ” “ ” From 2008, dementia will be regarded as anational priority supporting people to self manage their conditions in the community ”
What do people want? • Choice and control: • where to live • who to live with (if anyone) • what to do through the day • what support is required and who/how it should provided
What’s the problem? • Lots of detailed and highly professional assessment …. • Leads to being allocated existing services • Poor fit with people’s lives • Lack of creativity and flexibility • No thought given to natural supports
There are challenges ahead • Growing older population • Growing number of people living with a long term condition • Reducing group of unpaid carers • Finite resources • Over focus on hours of support • Reluctance to take risks
About personalisation • Puts full choice and control with the person • May or may not mean managing money • May or may not mean being an employer • Attorney or guardian with financial & welfare powers can do on person’s behalf • About getting a life, not a service
Personalisation is a spectrum Individual budget, choose services but no need to manage money Direct payment, employ personal assistant Direct payment, buy services
Vision and reality Vision: • A right • Individualised budget available to anyone, option to hold the money or not • Full flexibility in how it is spent to meet outcomes for person • ‘A life not a service’
Reality: • Direct payments/Self-directed support • Limited access • Misunderstandings • Barriers in social work depts • Size of support packages, eligibility criteria • Limited uptake
Alzheimer Scotland and personalisation • Specialist dementia services important • Our home support (individual support) services offer flexible support • Can use direct payments to buy our specialist services • Can top up direct payments if council’s rate too low • Can purchase privately
Alzheimer Scotland personalisation pilots • East Renfrewshire & Renfrewshire post-diagnostic pilot • Supporting people after diagnosis • Future care planning • Ayrshire Self-Directed Support pilot • SDS for people facing care home
Personalisation and dementia research project • Evaluate the potential of personalisation for people with dementia • Identify enablers and barriers • Learn from England • Find out the experience of people using SDS • Case studies • Report in Autumn
The Helpline and personalisation • Encourage thinking outside the box – but without raising expectations too far • Suggest self-directed support/direct payments • Be able to explain them • Support people to request them
www.alzscot.org Alzheimer Scotland Making sure no-one goes through dementia alone
