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The Family Role in Rehabilitation

The Family Role in Rehabilitation

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The Family Role in Rehabilitation

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  1. The Family Role in Rehabilitation PSRT 4271, Summer 2012 Department of Psychiatric Rehabilitation, School of Health Related Professions, University of Medicine and Dentistry of New Jersey T.H. Pyle, Instructor

  2. When the Illness comes…

  3. The impact on the family is like…

  4. To the family, it feels like…(“Hurricane Destruction”, NatGeo, 0:40) http://video.nationalgeographic.com/video/environment/environment-natural-disasters/hurricanes/hurricane-montage/

  5. And often like…(“Storm Surge”, NatGeo, 1:16) http://video.nationalgeographic.com/video/environment/environment-natural-disasters/hurricanes/storm-surge/

  6. Because sometimes it’s like…(Bellevue Inside Out Trailer 0:17) http://www.youtube.com/watch?v=Ojd_fsHbGl8

  7. And maybe more often like…(Smiley, Out of the Shadows, 2:41) http://www.youtube.com/watch?v=fCWGdUFyT8Q

  8. Thus, families need help like…(Bridgeway, 3:22) http://www.youtube.com/watch?v=VCJWp0ZkmKk

  9. So their loved ones can live like…(NAMI Los Angeles, 4:20) http://www.youtube.com/watch?v=Q7DHfolWaSQ

  10. So families can then feel like…(Vermont Public TV, 2009, 34 secs.) (“One Episode Away From Crisis”) http://www.youtube.com/watch?v=p109LTHCPrw

  11. And be empowered like…(Bring Change 2 Mind, 2011) http://www.youtube.com/watch?v=Fwu5F-T3814

  12. And they can be together like… • http://www.youtube.com/watch?v=WUaXFlANojQ

  13. Evolving Family Role in Care(Park et al., 2006)

  14. Course Objectives • Empathize with family’s efforts to cope with disability. • Recognize what families want and need. • Learn how to inform and support family members. • Help families help their loved ones and themselves.

  15. Course Particulars • Part of UMDNJ/Kean University dual major course • Upper level elective course • Summer, 2013 offering: 11 weeks • Classes: 1 x per week (3 hours) • “Web enhanced” on UMDNJ’s Moodle Platform • Mid-term and final exams • Projects: • Psychoeducation observation • Family interview • Expert guest speakers

  16. Course Themes • Severe Disability: A Family’s Dreadful New Reality • History of The System and Its Perceptions • What Is Family? A Conceptual Overview • Crisis Moments and Their Aftermaths • Confronting Grief, Burden, Stigma, Violence • Managing Expressed Emotion and Stressors • Cultural Differences of Impacts and Responses • Evidence-based Practices • Family Education • Family Psychoeducation • Family Consultation • Family Assertive Community Treatment

  17. Questions, Comments… • Instructor • Tom Pyle, e. pyleth@umdnj.edu, h: 609-924-7895, c. 609-658-2008

  18. What is… Psych Rehab?

  19. What is… Psych Rehab? • Comprehensive services… • …to develop skills and supports… • …to live, love, learn, and work … • …in the community as, how, and where desired… • …with least professional support… • …so to be in, and get to, recovery.

  20. Muhlbauer’s 3 Processes Cycles Spirals Sequences

  21. Muhlbauer’s Six Phases

  22. 1. Warnings • The “awareness spiral” Recognition  Concern  Alarm  Help seeking  Negation

  23. 2. Storm

  24. 3. Drift Instability, Recurrence Anger, Grief, Loss Questing Depletion ($) Dissatisfaction Stigmatization

  25. 4. Realignment Regaining “control” Managing feelings Changing perceptions, expectations Managing symptoms React  Act

  26. 5. Mastery Develop expertise Increase supports Manage better Share with others Maintain control Navigate The System http://www.youtube.com/watch?v=zzG4K2m_j5U

  27. 6. Growth Empowerment Advocacy Transcendence

  28. True Life: I Have Schizophrenia http://www.mtv.com/videos/true-life-i-have-schizophrenia/1586145/playlist.jhtml