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Future Challenges and Opportunities for European Policies for Health and Disability

Future Challenges and Opportunities for European Policies for Health and Disability. by GUNTA ANCA. European Disability Forum. EDF is an umbrella organisation with full members in 27 EU countries, Norway, Iceland & 43 European organisations representing different impairments or sectors

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Future Challenges and Opportunities for European Policies for Health and Disability

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  1. Future Challenges and Opportunities for European Policies for Health and Disability by GUNTA ANCA

  2. European Disability Forum • EDF is an umbrella organisation with full members in 27 EU countries, Norway, Iceland & 43 European organisations representing different impairments or sectors • Led by persons with disabilities & families organised in national and European federations • EDF brings the voice of disabled persons in Europe • EDF fights for the recognition of equal opportunities and human rights for disabled people in EU decision-making • We are there to make sure that ‘nothing about disabled people without disabled people’

  3. ICF and disabled people • The ICF is a key first step for recognition of ‘social model’ of disability in data collection • Disability issues are not just a medical or functional problem, but the result of interaction between a handicap and the social context • Adding next to restriction in participation, environmental factors thanks to DPOs involvement • To this date, application of most innovative elements of ICF remains limited • Use of existing data collection is based mainly on social protection needs • Need to move from counting disabled people to assessing responses of society to their needs

  4. The UN Convention - A Paradigm shift • UN Convention brings a paradigm shift from charity to rights, from a medical model where disability is a problem in the individual to a social/rights-based model. • People with disabilities are no longer victims or patients, but persons with rights and a role in society. • Comprehensive rights from education to information to justice to privacy to housing • Equality and non discrimination as leitmotiv • UN Convention to require further revision of ICF

  5. Bringing rights to life Implementation of the UN CPRD needs to be measured in key areas: • Access to employment • Access to education • Access to transport, buildings and the built environment; goods and services • Access to information • Right to social protection and welfare • Removing inequalities in healthcare, such as equal access to prevention, access of health services • Moving from rehabilitation to habilitation • Independent Living

  6. Other key challenges for data collection at EU level • Measuring implementation of current and future non discrimination legislation • Assessing effectiveness of provisions for free movement for disabled people and families • Access and quality of social and health services • Supporting move from segregated and distances services to community and personal based services

  7. Some examples of key issues for data collection • Data on existing accessible transport in various modes out of total service provided • Participation of disabled people in public health programmes (health screening, etc) • People requiring intensive support living independently, and/or working • Increase in employment or activity levels • Visibility of disabled people in media and broadcasts

  8. New approach to data collection • Need to collect appropriate info, including statistical data, to enable member States to formulate and implement policies • Statistics and data collection – analysis become a priority tool for monitoring and implementation of rights, and to identify and address barriers faced by disabled people in exercising them • Greater involvement of disabled people in preparation of data • Accessibility for disabled people in dissemination of results • Strong equal opportunities and environmental focus approach • Financial investment in the development of new analytical tools, surveys and pilots

  9. Key challenges • Need to look at participation evidence, but also accommodation (support) element vs overall environment • Need for specific and comprehensive surveys tackling different areas of participation • Ensuring a module on disability in main surveys - census • Data tackling participation of children, women with disabilities, person with intense support needs and with psychosocial disabilities • Harmonisation of data measurement • Disaggregation of main surveys by disability or regular disability modules • Participation of disabled people’s organisations in the process

  10. For More Information • http://www.un.org/disabilities/convention/facts.shtml • http://www.edf-feph.org

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