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This overview delves into the sophisticated data capture and management processes utilized in neonatal units under NDAU. Highlighting the integration of static, episodic, and daily data entries, this document outlines secure data handling, NHS connection protocols, and the importance of high-quality data for enhancing neonatal care outcomes. It also explores the auditing process for completeness and accuracy, emphasizing compliance with Caldicott Guardian guidelines to ensure patient confidentiality. Through collective contributions, we drive improvements in neonatal health.
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NDAU Database Yevgeniy (Eugene) Statnikov NDAU Data Manager
Data Capture Neonatal.Net • THANK YOU!
Overview Data Capture on Neonatal Unit: Neonatal.Net Storage: Clevermed Server Transfer to NDAU: NHS Connection Extraction: Clevermed Reporting: NDAU/NNAP Receive Data: NHS Server at NDAU Create Database: NDAU Database Review Data: NDAU
Data Capture Neonatal.Net • Static items – recorded once (1st admission) • Name, NHS number, gestational age, birthweight • Episodic items – recorded at each episode of care • Admission and discharge time, infection, diagnoses • Daily items – recorded at each day of care • Enteral feeding today, respiratory care today
Storage • Securely uploaded and held on NHS Server (Clevermed, Ltd) • Data are truly ‘raw’ NHS Server
Extraction • Information for neonatal units with • Caldicott Guardian permission only • All patient identifiers removed • No names or addresses given • NHS numbers encrypted • All dates (including date of birth) converted into minutes Clevermed
Transfer NHS Connection • Data encrypted • Transferred via NHS connection • Data received and held on NHS server at NDAU
Review Data • Examine the data • Completeness • Gestational age for all babies • Infection form: Sample recorded as taken but no pathogen results recorded thereafter Dataset Incomplete data entry NNAP AUDIT
Create NDAU Database • Assign numeric equivalents to frequently occurring free text items • Enteral feeding: (Formula name) → ‘Formula’ • Assign numeric equivalents to string items • Gender: ‘Female’ → ‘0’ / ‘Male’ → ’1’ • Remove duplicate items • If Admission Time of Episode 2 is beforeDischarge Time of Episode 1 then all days of care in Episode 1 will be duplicated in Episode 2 Inaccurate time entry NDAU Database
Create NDAU Database Neonatal.Net • Static items – recorded once (1st admission) • Name, NHS number, gestational age, birthweight • Episodic items – recorded at each episode of care • Admission and discharge time, infection, diagnoses • Daily items – recorded at each day of care • Enteral feeding today, respiratory care today
Create NDAU Database • Link static data items to episodic and daily items to create a dataset • Derive variables • ROP data for NNAP Episodic available in the following Neonatal.Net forms : Daily-details form, Ad-hoc ROP form, Discharge summary, Clinical summary of stay • Infection data for NNAP Episodic available in the following Neonatal.Net forms: Daily-details form, Ad-hoc Infection form, Discharge summary, Clinical summary of stay Data entered in multiple locations NNAP AUDIT ITEMS
Deriving data items: ROP Clinical summary of stay Ad hoc ROP form NNAP Discharge diagnosis, Principal diagnosis Daily details
Deriving ROP Ad hoc ROP form Daily details
Summary • Thank you for data submission • Help improve neonatal care and baby outcomes through audit • Audit requires high quality data • Completeness • Accuracy • Raw data • Daily clinical records
Acknowledgements • All neonatal units contributing to the NDAU • NDAU Team • NDAU Steering Board • Jane Abbott (BLISS) Jacquie Kemp • Prof. Peter Brocklehurst Prof. Azeem Majeed • Prof. Kate Costeloe Prof. Neena Modi • Prof. Liz Draper Prof. Andrew Wilkinson • Imperial College London Academic Neonatal Medicine Unit
Reporting: Completeness of BAPM Data Items • AdmitUnitCode (BAPM-Item 1 Name of Hospital) • DeprivationScore (Derived from BAPM-Item 3 Postcode of mother’s residence at time of birth) • IntendedPlaceofDelivery (BAPM-Item 4:Planned place of delivery at booking) • PlaceofBirth (BAPM – Item 5 Place of Birth) • AnonPatientId (Derived from BAPM-Item 6 Baby’s NHS Number) • AdmitFromUnitCode (BAPM – Item 9: Source of admission to unit) • AdmissionMonth/AdmissionTime (BAPM – Item’s 10 and 11 Date and Time of Admission) • Birthweight (BAPM Item 12) • GAWeeks (BAPM Item 13: best estimate of gestational age at delivery) • Gender (BAPM Item 14) • MultipleTotal ( BAPM Item 15: Number of fetuses) • MultipleIndicator (BAPM Item 16: Birth Order) • SteroidsGiven (BAPM Item 17: Antenatal steroids) • DischargeTime (BAPM Item 18) • DischargeStatus (BAPM Item 20: Discharge or Transfer destination) • ChestDrain/Tracheostomy (BAPM Item 27: Air leak requiring drainage) • ROPSurgery (BAPM Item 29: Therapy for retinopathy of prematurity) • VPShunt (BAPM Item 32: Surgical procedures as a result of post haemorrhagic hydrocephalus) • PDASurgery (BAPM Item 33: Surgery for PDA) • NECSurgery (BAPM Item 34: Surgery for NEC) • RespiratorySupport (BAPM Item 35: Days when an endotracheal tube is in situ/ Item 36: Days on CPAP) • CareLevel (BAPM Item 38: Number of IC days/Item 39: Number of HDC days/Item 40: Number of special care days)
Data entered in multiple locations: NEC Clinical summary of stay Suspected NEC form Discharge diagnosis, Principal diagnosis Daily details
