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Strengthening Global Bioethics in Health Research: A Decade of Dialogue

The Global Forum on Bioethics in Research (GFBR) has been a pivotal platform for fostering dialogue among researchers, ethicists, and stakeholders from diverse economic backgrounds for nearly ten years. With an emphasis on ethical issues arising from the increasing complexity of international health research, GFBR encourages collective exploration of unresolved ethical dilemmas. By prioritizing collaboration and inclusivity, it aims to enhance health equity and respect diverse values in ethical research practices. Join us as we evaluate our impact and seek ways to amplify unheard voices in this crucial domain.

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Strengthening Global Bioethics in Health Research: A Decade of Dialogue

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  1. Global Forum on Bioethics in Research – nearing 10 years of dialogue Sandra Realpe Ethics Officer, GFBR-Secretariat Xiuqin Wang Ethics Fellow, GFBR-Secretariat Edlyn Jimenez-Santos Ethics Fellow, GFBR-Secretariat Carel IJsselmuiden Director: COHRED

  2. our purpose • to strengthen the protection of human participants in ‘international collaborative health research’ • by bringing together researchers, ethicists and other relevant stakeholders from low, middle and high income countries • to encourage dialogue on key ethical and related social, legal and public policy issues resulting from health research in international settings

  3. rationale • increasing volume, complexity and global nature of health research • leading to continuously and rapidly changing ethical questions in design, management, ownership and impact of research involving human participants • that often outstrips the capacity of stakeholders • to keep up • to apply or adapt existing guidelines to new realities • to explore and resolve differences in opinions

  4. dialogue … • to create an environment where conflicting, unresolved ethical problems can be explored without expectation of immediate resolution • in a manner that facilitates learning and the potential for all voices to be heard • with the aim of : • promoting collaboration among all involved in health research ethics, generating better informed arguments, and influencing ethical research practice • that is respectful of values of all involved and contributes to health and health equity globally

  5. our purpose is NOT • to draft new guidelines • to arrive at ‘post conference’ statements • to become a normative organisation • to provide ‘training’

  6. annual meetings

  7. annual meetings

  8. distribution of participants 40% of the countries in the world have been ‘represented’ at some point

  9. distribution of participants: GFBR 1-8

  10. Institut national de la santé et de la recherche médicale partners at this time

  11. funding … • funding for meetings come from ‘funding partners’ and local host organisation(s) • funding for a ‘secretariat’ function come from a 2-year grant from the European Commission : 1/2007 - 12/2008 • a competitive grant mechanism – with COHRED as grant holder on behalf of partners (the FP6 – programme) • with some support coming from MRC UK and possibly from Wellcome Trust for work in 2009 • not a well-resourced organisation depending heavily on partners to provide ‘in kind’ support

  12. secretariat • hosted by: COHRED • key areas of work • ensure ‘continuity’ between meetings • facilitate collaboration among partners • provide an institutional memory of the GFBR • identification of emerging ethical issues in international health research • provide website, participant database, case-study databank • advocacy for capacity building for health research ethics • policy papers, information materials, peer-reviewed publication • fellowship programme • fund raising for GFBR activities

  13. secretariat • Governed by: • twice yearly meeting of Steering Committee of Partners • Managed by: • COHRED • Staffed by: • half-time ethics officer • full-time fellow from a developing country p.a. • Communicates through: • GFBR Newsletter • GFBR Website • Webmaster is Aga Khan Univ, Pakistan • www.gfbronline.com

  14. looking ahead … • evaluation • secretariat function • improving impact (are we being heard ?) • extension of functions: • from dialogue to ‘platform’ for unheard voices ? • from annual meetings to capacity building and follow-up action ? • from global to global and regional meetings ? • deepening representativeness of partners • taking note of globalisation of research and research capacity • private sector inclusion (how ?) • solidifying income

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