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Supporting Carers of People with Dementia: Key Moments for Information and Support

This report highlights critical points in a carer's journey where timely information and support are essential. Key moments include the initial dementia diagnosis, decline in the person's capacity, emotional support needs, mobility loss, behavior issues, changing circumstances of the carer, incontinence, decisions about residential care, and end-of-life care discussions. A primary recommendation is to identify the carer early, even before the person with dementia accepts their need for help. For more information, contact Julia Ellis at jellis@carers.org or call 07909 967862.

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Supporting Carers of People with Dementia: Key Moments for Information and Support

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  1. A Road Less Rocky- Supporting Carers of People with DementiaSocial Policy Research UnitUniversity of York and Firefly Research and Evaluation Julia Ellis, Development Manager, Carers Trust.

  2. Critical points along a carer’s journey where they would most value information and support. • When dementia is diagnosed; • When the capacity of the person with dementia declines; • When the carer needs emotional support or a break from caring; • When the person with dementia loses their mobility; • When the carer has to cope with behaviour problems; • When the carer’s own circumstances change; • When the person with dementia becomes incontinent; • When decisions about residential care have to be made; • When decisions about end-of-life care have to be made.

  3. Key recommendation: Identify the carer as soon as possible, even if the person with dementia hasn’t accepted his or her own need for support.

  4. For more information email Julia Ellis at jellis@carers.orgor call 07909 967862 Thank you

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