Urban and Rural Dementia Friendly Communities “Responding to Dementia ” Birmingham July 2014

1. Urban and Rural Dementia Friendly Communities“Responding to Dementia” Birmingham July 2014 Ian Sherriff Academic Partnership Lead for Dementia School of Medicine and Dentistry University of Plymouth

2. Margaret Mead Never doubt that a small, group of thoughtful, committed people can change the world. Indeed, it is the only thing that ever has.

4. What Promoted Plymouth Dementia Action Alliance Dementia Friendly Parishes in 2011 • Early Diagnosis of Dementia • 61% 0f Carers and Individuals with Dementia stated “they felt isolated and not understood by their community (Alzheimer's Society 2012)

5. State of the Nation Report on Dementia 2012/13 • 2/3rd of individuals with a dementia live in the community • 1/3rd live on their own • 80% of individuals in care have a dementia • Average diagnostic rates 44% • 59% felt lonely/isolated in their community

6. State of the Nation Report on Dementia 2012/13 1 in 4 beds in hospital taken up by an individual with dementia (Alzheimer's Society) The financial cost of dementia to the UK was over £23 billion in 2012. Carers save the government 6 billion World wide a person has dementia every 4 seconds

8. Dementia Data Devon and Plymouth • Devon Total 2012 12,117 • Devon Total by 2021 17,518 =40% increase • Plymouth Total2012 3,000 • Plymouth Total 2021 4,200 = 40% • Average Diagnostic rates across Devon 45%

10. Prime Minister’s challenge One of the greatest challenges of our time is what I’d call the quiet crisis, one that steals lives and tears at the hearts of families, but that relative to its impact is hardly acknowledged. We’ve got to treat this like the national crisis it is. We need an all-out fight-back against this disease; one that cuts across society."

11. Prime Ministers Challenges Research Health and Social Care Dementia Friendly Communities Rural Task and Finish Group 14 projects

12. Dementia Friendly Communities

13. A Dementia-Friendly Britain

14. Actions from G8 Dementia Conference 2013 World Dementia Envoy Dennis Gillings, to champion dementia research and development, and unlock investment, in countries across the globe including the G7 and OECD (The Organisation for Economic and Co-operation and Development). Currently 44.4 million people worldwide are estimated to be living with dementia global cost of dementia estimated to be $604 billion in 2010.

15. The first meeting of the World Dementia Council The first members of the World Dementia Council were announced on 30 April 2014 when the council held its inaugural meeting. The council aims to stimulate innovation, development and commercialisation of life enhancing drugs, treatments and care for people with dementia, or at risk of dementia, within a generation.

16. The National Dementia Strategy 2009 Awareness Early Diagnosis Support and Quality of Care

17. Building a Dementia Friendly Community

20. Want to become Dementia Friendly Nationally

23. The Aim of Both the Rural and Urban Projects To develop Dementia Friendly Urban and Rural Communities, thatrecognises the great diversity among Individuals with dementia and their carers, promotes their inclusion in all areas of community life, respects their decisions and lifestyle choice, anticipates and responds flexibly to their dementia related needs and preferences.

24. Out Comes From a Dementia Friendly Community • Increase in ability to live independently • Increase in autonomy and ability to make own decisions • Increase in confidence and caring capabilities • Increase in support networks • Improvements in general health and well-being • Improvements in memory and cognitive abilities • Improvements in fitness and nutrition

25. Out Comes From a Dementia Friendly Community • Improvements in feelings of being safe and secure • Improvements in the relationship between the person with dementia and their carer • Reduce care giver burden • Reduce social isolation and increase the ability to make new friends • Reduce levels of anxiety and depression • Reduce emergency admissions to hospital • More opportunities for respite care

26. Out Comes From a Dementia Friendly Community • More opportunities for participating in leisure/community activities • Less likely to visit the GP • Less likely to require early residential care • Less likely to require hospitalisation

28. 5 Rural Devon Parish Councils Achievement's after 10 months Monthly Steering Committee meetings; 20 families; Raising awareness with Parish Councils Groups (U3A , WI, N.F.U. Church and Community groups, businesses in the villages , Primary Schools, Marketing - Fund raising –promotion at community events, developing activities (gentle exercise, art& craft) Evolving our thinking, National & International Events, Website PAID WORKER Regular liaison with Medial Practices & CMHT Attracting individual supporters ( volunteers) befriending, car driving committee members etc

29. Devon 2012/2016 • 2 Centres of Dementia Excellence • Refurbishing 2 Residential Homes to become 2 Centres of excellence • Supported by Dementia Friendly Communities. • Pilot project 5 Dementia Friendly Parishes around the Yealm

30. Plymouth Dementia Action Alliances Sectors To develop the Plymouth Dementia Action Alliance from the following groups within the city:-Charity/Voluntary Agencies, Criminal Justice System, Emergency Services, University of Plymouth, Schools Digital/Communications/Networks, Health Care Sector, Leisure/Tourism, Local Authorities, Political Parties, Retail Sector, Transport, Utility Companies, Paid worker Financial Sector, Church/Faith Communities, HM Forces, the Press. Check List and a song

31. Some Examples of Organisations Supporting Plymouth Dementia Action Alliance The Naval Base, Naval Families Service, GP’s, City Council, City Retail Sector, Residential Care Sector, Dartmoor, Rescue, Health and Social Care, Blue Light Services, Churches Together Schools Programme, University Plymouth Raiders Basketball team, Dentists, Solicitors ,Press, ‘ Museums. Hearts, Minds and Culture

32. Questions for today • What barriers do people with dementia and their carers face when wanting to participate and access services in their local community? • What changes should organisations make in order to become dementia friendly? • What should communities do to make their area more dementia friendly? Which bodies and organisations should be responsible? • What should be the main factors to determine whether a city, town, or village is dementia friendly? • What examples of dementia friendly communities are already going on? What changes or initiatives have made a big difference?

33. Without the sense of Caring there can be “No” Sense of Community A.J Dangelo

35. Any Questions Contact Details isherriff@plymouth.ac.uk