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SOCIAL MEDIA FOR RESEARCH Opportunities for Collaboration and Knowledge Translation

ERIC BENCHIMOL, MD, PhD, FRCPC Assistant Professor of Pediatrics & Epidemiology University of Ottawa Children ’ s Hospital of Eastern Ontario Ottawa, ON. SOCIAL MEDIA FOR RESEARCH Opportunities for Collaboration and Knowledge Translation. JAY HOCHMAN, MD

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SOCIAL MEDIA FOR RESEARCH Opportunities for Collaboration and Knowledge Translation

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  1. ERIC BENCHIMOL, MD, PhD, FRCPC Assistant Professor of Pediatrics & Epidemiology University of Ottawa Children’s Hospital of Eastern Ontario Ottawa, ON SOCIAL MEDIA FOR RESEARCHOpportunities for Collaboration and Knowledge Translation JAY HOCHMAN, MD Pediatric GastroenterologistGI Care for Kids Atlanta, GA

  2. ca.linkedin.com/in/ericbenchimol/ ERIC BENCHIMOL, MD, PhD, FRCPC @ericbenchimol ca.LinkedIn.com/in/ericbenchimol ResearchGate.net/profile/Eric_Benchimol SOCIAL MEDIA FOR RESEARCHOpportunities for Collaboration and Knowledge Translation JAY HOCHMAN, MD @gutsandgrowth Pediatric Gastroenterology Blog: GutsandGrowth.wordpress.com @uOttawaMed

  3. SOCIAL MEDIA (DEFINITION) • Any technology that facilitates communication or collaboration between humans.

  4. Click View then Header and Footer to change this footer

  5. CRITICISMS OF SOCIAL MEDIA • Growth of technology • Privacy • Banality • Peripherality • Loss of authoritative perspective • Information overload • Work/life balance Cann, Social Media: A Guide for Researchers, 2011

  6. Bik and Goldstein, PLoS Biology, 2013

  7. OBJECTIVES • Review the use of social media to convey knowledge to the public (blogs) • Review opportunities to use social media for research knowledge translation (Twitter)

  8. KNOWLEDGE TRANSLATION (or “Why I Tweet”)

  9. KNOWLEDGE TRANSLATION • Definition: “the exchange, synthesis, and ethically-sound application of knowledge—within a complex set of interactions among researchers and users—to accelerate the capture of the benefits of research for Canadians through improved health, more effective services and products, and a strengthened health care system” Canadian Institutes of Health Research (2004)

  10. TIMELINE • Feb/2009: Attending KT course at the Hospital for Sick Children (Toronto) • Mar/2009: Started Twitter accounts @ericbenchimol (professional, general), @NewInIBD (IBD-related) • Jan/2011: Changed @NewInIBD to @CHEOIBD to reflect CHEO IBD Centre

  11. TIMELINE

  12. KNOWLEDGE TRANSLATION (SCIENTIFIC) Bik and Goldstein, PLoS Biology, 2013

  13. 10 Rules of Tweeting • @blakehounshell (editor, Foreign Policy) • THINK before you Tweet • Be indispensable. • Be a real person. • Don’t overshare. • Don’t be a me-tweeter. • Credit your sources. • Be transparent about what you know, how you know it. • Bring the non-Twitter world into Twitter. • Don’t get into flame wars. Don’t poke the trolls. • Engage your readers – they’re smarter than you.

  14. KNOWLEDGE TRANSLATION (SCIENTIFIC) • Twitter: • @NASPGHAN: #naspghan2013 • @GIKidsOrg • @AmerGastroAssn • Debate: • Usefulness of micro-blogging • Accuracy • Unpublished, non-peer review information Nature Methods 2011;8(4):273 Winstead, NCI Cancer Bulletin, 2011 Social Media Guidelines for AACR Conferences

  15. KNOWLEDGE TRANSLATION(PUBLIC) • Medical knowledge IS being disseminated using social media • Survey of tweets on antibiotic use: • 29.8% on general use • 16.2% advice/information • 11.6% on effects/negative reactions • 10.5% on diagnosis • 9.5% on resistance • 5.6% misunderstanding/misuse Scanfeldet al., Am J Infect Control, 2010

  16. Chafe et al., Nature, 2011

  17. KNOWLEDGE TRANSLATION(PUBLIC) Chafe et al., Nature, 2011

  18. KNOWLEDGE TRANSLATION(PUBLIC) • Scientists use: • Reports • Briefing notes • Press releases, news conferences • Patient groups: • Social media ‘Clinical Equipoise’ vs. ‘Facebook Equipoise’! Chafe et al., Nature, 2011

  19. GRANT-WRITING KT STRATEGY • #1 – Establish a social media presence • Theme • Target audience • Collaborations • Boil-down research to 140 characters?

  20. GRANT-WRITING KT STRATEGY • Questions to answer: • Who is your target audience? • How will you engage them and when? • What do they need to know? • How will your message be packaged? • How will your message be delivered to the targeted audience? • What do you hope to achieve by sharing your message? Adapted from: Goering et al., Final report submitted to Ontario Ministry of Health – Research Transfer Training Program, 2003

  21. GRANT-WRITING KT STRATEGY • Questions to answer: • Who is your target audience? • How will you engage them and when? • What do they need to know? • How will your message be packaged? • How will your message be delivered to the targeted audience? • What do you hope to achieve by sharing your message? Adapted from: Goering et al., Final report submitted to Ontario Ministry of Health – Research Transfer Training Program, 2003

  22. GRANT-WRITING KT STRATEGY • Example: • “The investigators have established a focused social media presence on ________ (>xxx followers) in order to disseminate knowledge to the public and interested parties. Additionally, the groups most affected by this study’s findings will receive specific information on how study results may impact them using Facebook groups, Twitter and other social media outlets. We will evaluate responses to our messages and the extent of propagation of results to guide future knowledge translation efforts.”

  23. GETTING INVOLVED Bik, PLoS Biology, 2013

  24. BOTTOM LINE • Social media is here to stay • Far reach • Influencing science DEVELOP A STRATEGY

  25. REFERENCE • Social Media: A Guide for Researchers http://www.rin.ac.uk/our-work/communicating-and-disseminating-research/social-media-guide-researchers • Bik and Goldstein. An Introduction to Social Media for Scientists. PLoS Biology 2013; 11(4): e1001535

  26. PATIENT RECRUITMENT

  27. Another real life example • Study on assessment of complementary feeding • Recruitment via “old” mechanisms: 1 in one year • Recruitment via “new” mechanisms: • https://www.facebook.com/AssessmentofComplementaryFeeding?ref=stream • 45 children in 5 months!!

  28. PATIENT RECRUITMENT • Lots of evidence for effectiveness • Use of Twitter to survey about dental pain • Use of MySpace to monitor HPV vaccine debate • Patient opinion after NIH Consensus Statement on VBACs Heaivilinet al., J Dent Res, 2011 Keelanet al., Vaccine, 2010 Romano et al., J Perinatal Educ, 2010

  29. PATIENT RECRUITMENT • Lots of evidence for effectiveness • CCFA Partners Internet cohort (n=7819) • Patient Assessment of Chronic Illness Care • 94.5% response rate! Long et al., Inflamm Bowel Dis, 2012 Randellet al., Inflamm Bowel Dis, 2013

  30. PATIENT RECRUITMENT • Lots of evidence for effectiveness • Also lots of evidence for concern: • Ethics • Privacy • Selection bias

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