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Eva Mnich, Hanneli Döhner

“Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage”. E U R O F A M C A R E. Care-Arrangements against the background of various welfare states models. First results of the EU-Project EUROFAMCARE. Eva Mnich, Hanneli Döhner.

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Eva Mnich, Hanneli Döhner

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  1. “Services for Supporting Family Carers of Elderly People in Europe: Characteristics, Coverage and Usage” E U R O F A M C A R E Care-Arrangements against the background of various welfare states models. First results of the EU-Project EUROFAMCARE Eva Mnich, Hanneli Döhner The EUROFAMCARE group: Germany: Döhner H. (project coordinator), Kofahl C., Luedecke D., Mnich E. (Hamburg) and Rothgang H., Becker R. (Bremen); Greece: Mestheneos E. (PI), Triantafillou J. (PI), Prouskas C., Mestheneos K.; Italy: Lamura G. (PI), Balducci C., Melchiorre M.G., Quattrini S., Spazzafumo L.; Poland: Bien B. (PI), Wojszel B., Synak B., Czekanowski P., Bledowski P., Pedich W,; Sweden: Öberg B. (PI), Krevers B., Johansson S.L.; United Kingdom: McKee K. (PI), Barber L., Brown J., Nolan M.

  2. Linköping University & Socialstyrensen Stockholm University of Hamburg University of Sheffield University of Bremen AGE – European Older People‘s Platform Brussels The Medical Academy of Bialystok & University of Gdansk National School for Public Health SEXTANT Athens Italian National Research Centre on Ageing INRCA Ancona Six Countries Comparative Study

  3. Aims • EUROFAMCARE will provide a European review of the situation of family carers of elderly people in relation to the existence, familiarity, availability, use and acceptability of supporting services. • EUROFAMCARE will push a change management process at various policy levels to promote social and health policies towards a partnership approach between family carers, professional providers and cared-for.

  4. Methodology • In depth studies in the 6 countries • 6.000 Interviews with family caregivers • Elderly in need of support aged over 65 • Extent of care/support 4 or more hours per week • Postal or phone interviews (follow-up study) after one year • Postal/phone or face to face interviews with service providers • Background Reports provided by both the 6 core countries and the 17 Pan-European countries

  5. Questions for Data Analysis • Differences of existing service provision on the one hand and on the other hand the knowledge about services and their availability, • The use and non-use of such service provision with fundamental reasons in special interest, • Experience with as well as evaluation of such services with respect to effectiveness and efficiency, • Claimed needs of support, resulting from the individual family situation, which beside others may point out a lack of specific services, • Specific types of family care situation and their relation to specific services, respectively the lack of services.

  6. The involved actors Organizations of volunteers Other informal assistants Elder Needs > Ressources Caregiving Relatives (Ressources etc.) Supply of support Service Provider

  7. Procedure Care-arrangements - rural / urban - separate / shared household • Caregiver • - Male / female • - Higher / lower educational status • Not gainfully employed / gainfully • employed • - Cares up to 2 years / more than 2 years • - Support / no support during illness • - Low burdened / burdened (COPE) • - Low / highlife quality • - Other /same generation • Cared-for • - Male / female • - under / over 80 years • - no / cognitive impairments (subjective) • - low / high functional impairments (ADL / IADL) • No need / need of financial • support in dichotomous criteria almost 33.000 combinations

  8. Reduction on cluster Country-specific key aspects of care-arrangements Relevance of support according to care-arrangements in countries Country-specific relevance of support Relevance of support according to care-arrangements Procedure Care-arrangement Family-Carer Cared-for

  9. 1 1 2 2 3 3 4 4 5 5 6 6 7 7 8 8 9 9 10 10 11 11 12 12 13 13 14 14 15 15 Care-arrangement 1 Care-arrangement 2 N=891 N=851 Prozent von ...

  10. 1 1 2 2 3 3 4 4 5 5 6 6 7 7 8 8 9 9 10 10 11 11 12 12 13 13 14 14 15 15 Care-arrangement 3 Care-arrangement 4 N=824 N=419 Prozent von ...

  11. 1 1 2 2 3 3 4 4 5 5 6 6 7 7 8 8 9 9 10 10 11 11 12 12 13 13 14 14 15 15 Care-arrangement 5 Care-arrangement 6 N=775 N=571 Prozent von ...

  12. 1 2 3 4 5 6 7 8 9 10 11 12 13 14 15 Care-arrangement 7 N=1053 Percentage of ...

  13. Distribution of care-arrangements N=5384

  14. Distribution of care-arrangements in the six countries N=889 N=792 N=972 N=884 N=949 N=898

  15. Dimensionanalysis of important forms of support

  16. Overview of focal needs in respective countries categorized in groups of care-arrangements (CA)

  17. Overview of focal needs in respective countries categorized in groups of care-arrangements (CA)

  18. Overview of focal needs in respective countries categorized in groups of care-arrangements (CA)

  19. + + Information (finan./technical)* + finan./technical (information)* (stresscoping)* + finan./technical + Stress coping + (finan./techn.)* (time autonomy)* (Information)* - finan./technical (stress coping)* - - Time autonomy - (stress coping)* - Information (time autonomy)** - finan./technical Summary * in special care-arrangements ** concerns caring spouses / partner

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