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GEISER Foundation

Spreading the Word of Rare Diseases Internationally Rare Disease Day 2008 & 2009 Virginia Llera,MD "Promoting the cause of rare diseases over Latin America” V ICORD – Rome, February 23 rd ,2009 fundgeiser@yahoo.com.ar. GEISER Foundation. Latin American & Caribbean (LA&C) NGO Non profit

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GEISER Foundation

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  1. Spreading the Word of Rare Diseases Internationally Rare Disease Day 2008 & 2009Virginia Llera,MD "Promoting the cause of rare diseases over Latin America”V ICORD – Rome, February 23rd,2009fundgeiser@yahoo.com.ar.

  2. GEISER Foundation Latin American & Caribbean (LA&C) NGO Non profit Improving QOL in people living with RDs Founded in 2002

  3. World Rare Disease Day (WRDD)GEISER subscribe to WRDDbecause it may fit with “the mirror” model to LA&C NGOs.

  4. The mirror stage model During the mental development of a subject… The integration of it corporal image is given by the mirror stage model… allowing him to better interact with it environment. Likely, During the development of organizations (NGOs), “mirrors” helps to recognize and integrate its owns resources.

  5. The mirror stage model During the development of organizations (NGOs), “mirrors” helps to recognize and integrate its owns resources. Allowing… Best outcomes. Broader impacts in their activities. Maximize efforts. Increase the accuracy of aims.

  6. In which “mirrors” an organization could be reflected?

  7. Supra-level organizationsSupra-level actions

  8. Which are adequate “mirrors” for LA&C NGOs?

  9. An Adequate mirror Those organizations or actions willing to invest in a process of mutual recognition and respect.Those promoting the integration of actions against isolated achievements. The supra level organization or action should benefit the “level” organization, not viceversa.Supra-level organizations or actions should guarantee the mission compliance.

  10. GEISER as a mirror for LA&C NGOs GEISER launching meetings at Colombia uniting ONGs working with academia for the WRDD. GEISER unite ONGs in order to produce a video for WRDD at Brazil. Provincial tour for RD at Panama by NGOs and Government. Argentinean WRDD celebrated in the streets, with media and government support.

  11. WRDD at LA&C - conclusions Supra level actions has critical impact in LA&C. A good mirror help to grow. A broken mirror may bring disadvantageous. Therefore, Supra level organizations or actions should spend enough time to consider the benefit for the “level” organizations, as mistakes will be afforded for such level only.

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