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Health Care Reform Activism: Disability Perspective (NMSS)

Health Care Reform Activism: Disability Perspective (NMSS). APHA Conference Denver CO Nov 2010 Tammy Pilisuk, MPH. Presenter Disclosures. Tammy Pilisuk, MPH.

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Health Care Reform Activism: Disability Perspective (NMSS)

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  1. Health Care Reform Activism: Disability Perspective (NMSS) APHA Conference Denver CO Nov 2010 Tammy Pilisuk, MPH

  2. Presenter Disclosures • Tammy Pilisuk, MPH The following personal financial relationships with commercial interests relevant to this presentation existed during the past 12 months: No Relationships to disclose

  3. Early Start Jan’08 est. FAC; “HCR Principles” top priority! Feb-April ‘08 Develop principles May ‘08 Ratify principles Fall ‘08 Education 7 outreach May ‘09 Activists take to Hill

  4. Advocacy Tool • 7 principles; chronic disease/disability focus • Appeal to popular issues • Spur allies

  5. Summary of Principles • 1. Accessible –regardless of pre-existing condition • 2. Affordable –coverage limits for chronic conditions discriminatory • 3. Standards for specific treatments —prevent deterioration • 4. Eliminate disparities —accessible exam rooms, transport • 5. Comprehensive, quality care —full spectrum benefits, unfettered access to specialists • 6. Coordinated care —reduce redundant tests, utilize EMRs, patient inclusion in care management • 7. Long-term supports & services —not covered in private insurance

  6. Strategic Outreach • Presented to Hill leaders, coalitions • “First family” connection Harold Pollack Posted: October 2, 2008 10:35 AM Health Reform When your Life Depends on it: Seven Essential Principles from the Multiple Sclerosis Society…

  7. Coalitions Key • Consortium of Citizens with Disabilities • More groups = 1 voice on core issues

  8. Organized Grassroots Over 30 people say it to the camera!

  9. Educate Members • National Call with Chapters • Introduce to local boards • Action alerts to GRCs Be an MS Activist: Sign up to receive news and updates

  10. 2009 PPC centerpiece 2009: HCR a top issue 2010: mixed message

  11. E-Alert to support House bill Say what??? Political vs. traditional issue Unexpected Consequences

  12. Post ACA passage

  13. Update on Health • Care Reform • Pleasecreate an accountor sign into save pages to My Content. • Frequently Asked Questions About Health Care Reform • The following questions and answers represent the most common areas of interest expressed to the Society by people living with MS about the Patient Protection and Affordable Care Act since it was enacted in March 2010. The law is very complex and was designed to be implemented over a number of years…

  14. Leveraging & Communicating Health Care Reform for the MS Community

  15. Target Info to MS Community • Regional teleconferences • E-blasts on ACA updates • “Drop-in” newsletter articles • Collaborate w/ Families USA, others CALENDAR ITEM: Heath Care Reform: What it Means for People Living with MSOct 28th, 2010 Marriott - Oakland City Center

  16. ACA Implementation Actions • Consumer rep on • Review proposed regs • lifetime caps & phase out annual benefit caps • Med loss ratios: chronic care mngmt = proven only! …External review ofrescissions and other non-medical coverage determinations are necessary to ensure that health insurance companies are in full compliance with the law and to protect consumers….

  17. Chapters & Activists: Shift to states, Coalition involvement Shape Health Ins. Exchanges Ongoing Involvement

  18. NMSS Leadership: HCR top strategic goal CLASS ACT & Community First Choices Act regs (2012 phase-in) Pursue other legislation Ongoing Involvement (Cont’d)

  19. Lessons Learned • “Principles” a good organizing tool • Coalitions essential • Compromises inevitable • Battleground: inform constituency, work within existing framework, AND advocate for more

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