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Children with Epilepsy & Disability

Children with Epilepsy & Disability. Lifestyle Modification. At Home. Must be encouraged to use the shower instead of bathtub. Must not lock the bathroom door (safety first, privacy second).

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Children with Epilepsy & Disability

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  1. Children with Epilepsy & Disability Lifestyle Modification

  2. At Home • Must be encouraged to use the shower instead of bathtub. • Must not lock the bathroom door (safety first, privacy second). • Avoid “enveloping-type” or suffocating sleeping surface like soft pillow and bed covers (thick blanket, comforter). • Extensively clean and neat surrounding. Keep sharp and hazardous items in drawers and high cabinets to avoid epileptic child falling unconscious onto the items and hurt themselves. • Avoid stairs and hot stoves . • Ensure enough sleep as sleep deprivation can trigger seizure. • Clothing must be loose to allow efficient ventilation and prevent strangulation during seizure. (ILAE Comission Report: Restrictions for Children with Epilepsy, 1997)

  3. Sports & Activities • Outdoor activities are limited to places at close distance from house/healthcare centre where help is easily available in cases of emergency. • Only mild to moderate activities are encouraged. Severe activity may trigger seizure. • Activities are best to exclude bodily-challenging ones like being in water, on top of trees, car-racing or tying self with strings to avoid injury in case seizure happens unexpectedly (Svoboda, 2003). • There should always be adult supervisor with the child. • Best to encourage quiet play. • Emphasize the usage of safety gears (helmet, safety belt, knee and elbow pads) at all times.No excuse to skip these things at all.

  4. Medical Equipments Arrange to have the devices always ready at nearby place: • Oxygen supply device • Wheelchair • Medication • Soft towel • Fan

  5. Diet • Certain types of food to avoid based on study done in Motahary Clinic at Shiraz, Iran: “Dairy products, sour foods, fruits, and vegetables were the most common foods reported to be responsible” (Asadi-Pooya & Ghaffaria, 2004) • Ketogenic diet (rich in fat, low in carbohydrate), Atkins diet (unrestricted protein, calories, fluid) (Seizure and Epilepsy: Hope Through Research, 2009)

  6. References Asadi-Pooya, A. A., & Ghaffari, A. (2004). Do patients with epilepsy believe they need specific dietary restrictions? . Retrieved December 2009, from ScienceDirect: http://www.sciencedirect.com/science?_ob=ArticleURL&_udi=B6WDT-4DMX0Y4-2&_user=10&_rdoc=1&_fmt=&_orig=search&_sort=d&_docanchor=&view=c&_searchStrId=1146014537&_rerunOrigin=google&_acct=C000050221&_version=1&_urlVersion=0&_userid=10&md5=0d8626415625d282a4 ILAE Comission Report: Restrictions for Children with Epilepsy. (1997). Epilepsia , 1054-1056. Seizure and Epilepsy: Hope Through Research. (2009). Retrieved December 2009, from National Institute of Neurological and Stroke: http://www.ninds.nih.gov/disorders/epilepsy/detail_epilepsy.htm#141243109 Svoboda, W. B. (2003, September). Safety and seizures in childhood: The human side. Retrieved December 24, 2009, from Epilepsy.com: http://www.epilepsy.com/articles/ar_1064603283

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