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Ann Turnbull (turnbull@ku) Rud Turnbull (rud@ku)

The “Nuts and Bolts” for a Person with Significant and Multiple Disabilities to Have a Home of his Own: The Turnbull Family’s Experience. Ann Turnbull (turnbull@ku.edu) Rud Turnbull (rud@ku.edu). Carolina Institute for Developmental Disabilities Carrboro, NC September 9, 2015.

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Ann Turnbull (turnbull@ku) Rud Turnbull (rud@ku)

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  1. The “Nuts and Bolts” for a Person with Significant and Multiple Disabilities to Have a Home of his Own: The Turnbull Family’s Experience Ann Turnbull (turnbull@ku.edu) Rud Turnbull (rud@ku.edu) Carolina Institute for Developmental DisabilitiesCarrboro, NC September 9, 2015

  2. Jay Turnbull 1967-2009

  3. Epiphany of Double Standard

  4. How many adults with significant disabilities do you know who have an enviable life – one that you would want for yourself and your family?

  5. “No matter how far down the wrong segregated road you go, if it’s the wrong road – turn around”

  6. “What Will You Do When You Fail?”

  7. Jay’s Adult Life Job Friends Cheers Connections Home of His Own Transportation Wellness

  8. JT’s Weekly Supports

  9. Job

  10. Home of His Own

  11. Music

  12. Friends

  13. Cheers Connections

  14. Girlfriend

  15. Jay’s Adult Life Job Friends Cheers Connections Home of His Own Transportation Wellness

  16. JT’s Weekly Supports

  17. JT’s Weekly Supports

  18. What was the key to Jay’s enviable life? http://www.youtube.com/watch?v=H8N7uVOQTDU

  19. First House • Catalyst • Choice of house • Finances • Weekly schedule • Housemates

  20. $ Individual Budget Places the Individual and Family in the Driver’s Seat! The individual controls the Medicaid allocation with assistance from a fiscal intermediary.

  21. Who is the Participant in Participant Direction? • Participant acting independently on her/his own • Parent(s) of a minor child • A legal representative • A non-legal representative Centers for Medicare and Medicaid Services (CMS)

  22. Participant Direction Opportunities • Participant-Employer Direction • Participant rather than a service provider agency carries out employer responsibilities to recruit, hire, and supervise workers.  • Participant-Budget Direction • Participant has the authority and accepts the responsibility to manage his or her budget.  Centers for Medicare and Medicaid Services (CMS)

  23. Second House • Catalyst • Choice of house • Finances • Weekly schedule • Housemates

  24. Be in the dignity business!

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