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Developing a software-based system to improve ART program and patient monitoring in resource-constrained settings. Focus on building local capacity, open-source solutions, and disease management. Seeking feedback for future enhancements.
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Software Based Systems for ART Program and Patient Monitoring
Situation • We are working in an environment where capacity is weak in all areas. • We have poor infrastructure in transport, communication, resources, human resources, training, health care skills, supplies, equipment, medications. • We do know that without good information, the initiative will fail.
AIDS • AIDS is a multi-faceted disease that touches on all areas of health care and many areas of culture and society. • AIDS is challenging since it will require continuous lifetime medical care and treatment.
Principles: • AIDS care integrated into country health system • HIS is absolutely essential for the Initiative to work • Must build local capacity for sustainability • Keep it simple
Plan: • Plan for strengthening capacity of existing HIS • We will need to build patient longitudinal medical records • We will need to build ties with laboratory and logistics
How: • Need prototype systems that are 90% functional and can be easily customized to meet local needs • RHI register (DHIS) • PMTCT register • ART EMR
Issues • Architecture • Disease Management • Free open source model is the most “Development Friendly” • Standards
Indicator definitions Data standards Data communication standards Data flow Data Standards
Sustainability • Software systems require constant maintenance • Imported systems suffer the same fate as other high tech equipment • It breaks and nobody knows how to fix it • Must have open systems that can be maintained locally • Must build local capacity to maintain the systems
Key Criteria for ART Software • Thin client - server • Open source • Basic ART data set • Disease management
The Envelope Please • We do not have a winner. • We are close. • Next steps...
Current Systems • Proprietary Systems • TherapyEdge • Systems Built on EpiInfo/Access • CareWare • Thin Client Server Open Source • OpenEMR, Care 2x
Inventory Project • Collaborative Workgroup • Clearinghouse for information on: • software systems • implementation • customization • metadata • Feedback on systems • This is an open system - we want your feedback
Future Work for the Inventory • Logistics Systems • Information synergies with patient systems • Laboratory Systems • Innovative Technologies (smart cards, cell phones, PDAs, etc) • Paper systems interface • Metadata repository