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Explore how the LuCE Association collaborates with patients and healthcare providers to identify, understand, and address lung cancer patient needs. Learn about the patient-led guidance and informative website launched to improve care quality and support patient priorities. Find information in multiple languages, latest research, and treatment options.
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Ewelina Szmytke Lung Cancer Europe (LuCE), Association For The Fight Against Lung Cancer, Poland and ELF Council
Lung cancer patient priorities WHY? • To include the LC patients needs, • To help the healthcare professionals understand these needs and create the best possible relation with the LC patient.
LUNG CANCER PATIENT PRIORITIES HOW? By developing: a patient-led guidance for patients andhealthcare professionals to be implemented in healthcare centers. a patient priorities lung cancer websiteas a source of quality information in Europe Priorities identified through: online survey(in 15 languages), workshops in Brussels and Amsterdam, Worked closely with ERS lung cancer working group.
Patient advisory group (PAG) • Formed to guide and inform the project • 16 individuals from: Czech Republic, Denmark, Germany, Ireland, Italy, Poland, Spain and UK
PATIENT PRIORITIESLUNG CANCER WEBSITE LAUNCHED World Lung Cancer Day - 1 August 2016 www.europeanlung.org/lungcancer • Basic and detailed information • Latest research • Videos from PAG members • Support organisations • Information in other languages • Priorities for treatment
OCCUPATIONAL HEALTH PROJECT WHY? • To provide information for people who may be worried about the impact of their workplace on their lung health • To help people think about possible causes of their lung problems when they go to see their doctor HOW? • Using a quiz or interactive tool to get them interested • Information to be provided on a website