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Saturday, September 28, 2019 Convene Conference Center Los Angeles, CA

2019 Regional. Saturday, September 28, 2019 Convene Conference Center Los Angeles, CA. National Multiple Sclerosis Society. National MS Society History.

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Saturday, September 28, 2019 Convene Conference Center Los Angeles, CA

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  1. 2019 Regional Saturday, September 28, 2019 Convene Conference Center Los Angeles, CA

  2. National Multiple Sclerosis Society

  3. National MS Society History • In 1946, frustrated by her inability to find solutions to her brother’s visual and balance problems, Sylvia Lawry placed an ad in the New York Times. It read: • “Multiple Sclerosis. Will anyone recovered from it please communicate with patient.” • She ended up getting 50 replies sharing similar frustrations and then single handedly launched an international war on MS.

  4. What does the NMSS do for our patients? • “Whatever It Takes” • Research • Largest nongovernmental source of funding of MS Research • Advocacy • Federal, state, local • First patient advocacy organization to comprehensively address high prescription drug cost • Ensuring access to health care for people living with MS • Research funding • Support services • Education • MS Navigator program

  5. MS Navigator Program • Offers Comprehensive Support • Connection to local programs, community resources, and self-help groups • Employment, Benefits, Health Insurance • Financial assistance • Crisis intervention • Case management services • Financial Planning • Caregiver/Support and Engagement • Direct contact information: • 1-800-344-4867 • contactus@nmss.org • www.nationalmssociety.org

  6. Connection to NMSS in California • Approximately 45,000 people living with MS are connected to the National MS Society in California. • There are multiple accessible offices throughout the state, with the closest being: • 5150 W. Goldleaf Circle, Suite 400 Los Angeles, CA 90056

  7. What can the NMSS do for you? • Professional resource center • Resources for each discipline • Professional Education • Quarterly webinars • CME opportunities • Research Funding • Funded fellowships • Student mentorships

  8. Continuing the Next Generation of MS-Ologists

  9. Healthcare Provider Council Accomplishments FY19 • MS Summit educational conference • MS Pearls Webinar in celebration of MS Awareness week for providers • Symptom management, health and wellness, and mental health • Advocacy education • flyer on Non-Medical Switching distributed providers • Appeals toolkit updated for all DMTs, durable medical equipment, etc. • Student Group In-services • PT/OT students • Health Sciences students

  10. Healthcare Provider Council FY19 • — Chair —Carrie Hersh, DO, MSc • — Co-Chair —Barbara Giesser, MD • — Members — • Carole Bender, LCSWMargaret Burnett, MD • Rebecca Cunningham, OTD, OTR/LJack Florin, MDAudrey Goldman, LCSWAndrea Hanssen, RNLe Hua, MDElizabeth Morrison-Banks, MD, MSed • Mark Morrow, MD

  11. Research at the National MS Society • In 1947 the Society sponsored its first three research projects. Today our investment in innovative research exceeds $1.06 Billion and with this investment we’ve: • Recruited more than 900 new MS researchers to the field • Provided early career support and funding to nearly every thought leader in MS research • Set standards in diagnosis, symptom management, pediatric MS, complementary and alternative medicine, rehabilitation research, clinical trial strategies and stem cell research • Established the MS field of nerve and myelin repair which resulted in trials for treatment • Drove research uncovering genes contributing to MS susceptibility and new treatment avenues • Paved the way for all existing therapies – none of which existed 20 years ago • Ongoing clinical trials can be found at: • https://www.nationalmssociety.org/Research/Participate-in-Research-Studies

  12. Questions? Comments? • Katelyn Michtich • Manager of Healthcare Provider Engagement • 310-481-1131 • Katelyn.Michtich@nmss.org

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