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Life After Care: Exploring Transition Experiences of Former Caregivers

This study by the Athens Association of Alzheimer’s Disease and Related Disorders delves into the lives of former caregivers following the loss of loved ones afflicted with dementia. Through semi-structured interviews, 32 participants shared their journey from care to recovery, revealing significant changes in their biographies, emotional transitions, and daily routines. The research identifies both the challenges faced after caregiving and the newfound freedoms embraced in their lives, highlighting activities such as spending time with family, volunteering, and pursuing hobbies that were neglected during caregiving.

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Life After Care: Exploring Transition Experiences of Former Caregivers

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  1. ATHENS ASSOCIATION OF ALZHEIMER’S DISEASE AND RELATED DISORDERSLLP “Life after Care”AggelikiVlachogianniAretiEfthymiou

  2. LLP “Life after Care” Semi – structured Interview Part 1 - Explore how the person became a carer. Most significant steps and most important changes in individual biography. Part 2 – Explore the caring experience with BEI Method. Which were the most significant tasks of your caregiving experience? Could you please make a list? Part 3 – transition from the role of carer 32 former carers have participated in our research

  3. The transition from the role of carer • Which were the most difficult moment after the loss of your relative / friend / partner? • What did you do / feel / think? What did you think about other people involved? What did you want to do? What did you do? How did it end? What happened? Who or what was more helpful? • How has your life changed? How is your daily life / routine changed? • Who are the people that you meet regularly? (Design a map of his / her relations, specifying intensity and type of contacts). • Re-submit the semantic differential on prevalent emotions / behaviours referred to nowadays

  4. “Now, I have plenty of time. I can see how much time I spent for her care. I understood how fast the time was running” “Now, I feel more relaxed. I was so tired back then. I go out, I go for swimming” “Now, I am so far away from all the obligations that this disease bring together”. “I feel empty. My either half is missing. I am wandering why had happened that to me. If you have been in that position you start to care for all the people that are suffering. Now, I want to go out all the time, to gain the time I have missed”

  5. “I take care of my grandson, I do gardening. I wasn’t able to do that when I was caring for my sister” “I take care of my grandchild. My daughter is working. I couldn’t do that when I was caring for my husband” “I go twice a week to my grandchildren and I visit my sister. I invite friends to my home. I prefer it than visiting them. Time heals the pain” “I try to do voluntary work in a Dementia Center. I am a member of an NGO for children with chronic diseases and sometimes I go excursions with an aunt of mine.

  6. ATHENS ASSOCIATION OF ALZHEIMER’S DISEASE AND RELATED DISORDERS M. MOUSOUROU 89, ATHENS, GREECE, 11636 TEL. +30 210 70 13 271 kentroalz@ath.forthnet.gr www.alzheimerathens.gr

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