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Supporting Deaf People with Dementia

Learn about the unique challenges faced by Deaf individuals living with dementia and discover strategies to provide effective support. This presentation covers topics such as communication, cultural considerations, and potential solutions.

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Supporting Deaf People with Dementia

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  1. Ensuring Deaf people with dementia are supported Professor Alys Young & Emma Ferguson-Coleman University of Manchester

  2. What you will know in 15 minutes’ time… • Definitions of being Deaf • What it means to live with dementia as a Deaf BSL user • How you can support Deaf people living with dementia

  3. Being Deaf • Linguistic and cultural minority • BSL is a recognised language in UK • Prevalence of older Deaf population (Young, 2013)

  4. Living with dementia as a Deaf BSL user • Diagnosis pathway – what are the barriers? • Support after diagnosis – where would a Deaf BSL user go? • Maintaining everyday life – how is this achieved?

  5. Living with dementia as a hearing person Living with dementia as a Deaf BSL user If my carer cannot sign, how can my language, culture and well-being be supported? We are likely to have been marginalised all our lives, not seen, not valued, not attended to – what will change? My family might not use the same language as me My friends may not understand what dementia is My carers may not know me • Communicating helps language, expression and well being • Marginalisation is a risk, being forgotten, not attended to, not valued • My family and friends will offer support as they know me

  6. Potential solutions for support • Clear and visual communication • Reducing marginalisation and maintaining the person’s independence • When do I work with an interpreter? • Culturally appropriate activities

  7. Questions?

  8. Contact Professor Alys Young 0161 306 7747 alys.young@manchester.ac.uk Emma Ferguson-Coleman emma.ferguson-coleman@manchester.ac.uk

  9. Publications Young, A., Ferguson-Coleman, E. & Keady, J (2014). Understanding the Personhood of Deaf People with Dementia: Methodological Issues http://www.sciencedirect.com/science/article/pii/S0890406514000486 Ferguson-Coleman, E., Keady, J. & Young, A (2014). Dementia and the Deaf community: knowledge and service access. Aging Ment Health, 18(6), 674-682 http://www.tandfonline.com/doi/pdf/10.1080/13607863.2014.880405 Young, A., Ferguson-Coleman, E. & Keady, J (2014). Understanding dementia: effective information access from the Deaf community's perspective.  http://onlinelibrary.wiley.com/doi/10.1111/hsc.12181/abstract Young, A., Waterman, H. & Ferguson-Coleman, E (2014). Dementia Gateway: Sensory Loss and Dementia. http://www.scie.org.uk/publications/dementia/living-with-dementia/sensory-loss/files/sensory-loss-research.pdf Young, A (2014). Older Deaf People and Social Care. 1-31 http://royaldeaf.org.uk/files/files/RAD%20GENERAL/Documents/older_deaf_people_and_social_care.pdf www.manchester.ac.uk/deafwithdementia

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