1. Systematic Scoping Reviews Megan O’Brien, PhD, MPH Glen White, PhD Amalia Monroe-Gulick, MLS Dot Nary, PhD Sasha Li, BA Advisory Panel: Jana Peterson, PhD, MPH, Jean Ann Summers, PhD, John Westbrook, PhD, Marsha Katz, MSEd, and Tom Seekins, PhD

2. Systematic Scoping Reviews – Why? “It is important not only that we know what we know, but that we know what we do not know” – (Lao-Tze, Chinese Philosopher) • Information overload • Identify areas of uncertainty • Identify areas where new research is needed • Systematic and rigorous – reduce bias, cherry picking to make a case

3. SSR compared to SR • Familiar with “systematic reviews” • Campbell and Cochrane Collaborations • Meta-analyses • Purpose: • Effectiveness of specific intervention Parent Training for Intellectually Disabled Parents • Influence of a specific variable on an outcomes Vitamin C on the common cold

4. SSR Compared to SR

5. SSR –Disparities in Clinical Preventive Service Utilization • Key question: • What English-language studies, conducted in the U.S. and presenting original analyses, have been published in the peer-reviewed literature from 2000 – 2009 that examine clinical preventive service use disparities among subgroups of people with disabilities ages 18-64? • SSR2 extension added years 2010-2011 to keep current

8. Implications • Lack of CPSs among people with disabilities is established. Clinicians and advocates must be familiar with CPSs and disparities in utilization. • Research tends to focus on certain CPS. • Need for research on other CPS and disparities in utilization within the population

9. SSR – Risk Factors for Institutionalization • Key question: • What peer-reviewed, English-language studies that include working age (18-64 years) U.S. population have been published from 2001 – 2011 that focus on risk factors for institutionalization (i.e., nursing homes, group homes and similar congregate living facilities) among people with disabilities ages 18-64?

10. Results and Lessons Learned So far • Mostly psychiatric • Defining terms: institutionalization • Using “pre-screen” • Studies not designed to identify risk factors • Importance of the librarian

11. Importance of a Librarian • Embedded librarianship integrates librarians into university research missions. • Contribute to knowledge creation using specialized knowledge and skills • Literature searching • Translate operational definitions of concepts/topics into robust search strategies • Database context, searching features (keywords, MESH terms, wildcard operators). • Interface upgrades, database platforms change over time • Selecting most appropriate database

12. Implications • Great need for studies in this area • SSRs require an embedded librarian approach – not just support