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Jak propojit zdravotnické informační systémy a nevytvořit při tom „velkého bratra“

Jak propojit zdravotnické informační systémy a nevytvořit při tom „velkého bratra“. Doc. MUDr. Jiří Kofránek, CSc. UK Praha Ing. Ondřej Felix CSc. Hlavní architekt eGovernmentu , MV ČR. How to connect the healthcare information s ystems and also not create a „ big brother “.

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Jak propojit zdravotnické informační systémy a nevytvořit při tom „velkého bratra“

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  1. Jak propojit zdravotnické informačnísystémy a nevytvořit při tom „velkého bratra“ Doc. MUDr. Jiří Kofránek, CSc. UK Praha Ing. Ondřej Felix CSc. Hlavní architekt eGovernmentu, MV ČR

  2. How to connectthe healthcare information systems and also not create a „big brother“ Jiří Kofránek, Charles University Prague Ondřej Felix eGovernmentchiefarchitect, MinisteryofInterior

  3. Moderninformationtechnologies Organizationalchanges Tools for making more efficient healthcare

  4. The necessary condition of healthcareinformationsystemsfunctionality Healthcare information transfer (about patients, about medical services, economic costs, etc.) Protection of sensitive personal data

  5. How not to build anOrwel's "big brother" Protection of sensitive personal data How to safely interconnect healthcare information systems? Necessary to ensure bothrequirements Sharing Protection

  6. Interconnectionofinformationsystems utilization of health insurance payment Data sharing Protectionagainstunauthorizedaccess mustensure • Citizen should have access to any records, that are kept on him In the case of health care information systems – citizen should have access to his medical records, to his the financial report on the utilization of its payment of health insurance etc. • A citizen should be able to itself (via Internet) to initiate updating the changed data (eg. change of address of residence). Two fundamental rights of citizens

  7. Central Health Registers Cardiosurgeryregister Acuterespiratoryinfectionsregister Nationaltransplantationregister Arthralimplantregister Vascularsurgeryregister Tuberculosis register ophthalmologyregister Veneraldiseasesregister Agioplasticregister Nationaloncologicregister Intensivehealthcareregister

  8. Individual biomedical data Central Health Registers Cardiosurgery register Acute respiratory infections register National transplantation register Arthral implant register Vascular surgery register Tuberculosis register ophthalmology register Veneral diseases register National oncologic register Agioplastic register Intensive healthcare register !!!Very sensitive personal data!!!

  9. Individual biomedical data Individual data Central Health Registers For therapy and diagnosis Statistical data For evaluation of effectiveness of various therapeutical and diagnostical approaches Strong data security management Individual data in central registers! Anonymous data in central registers! !!!Very sensitive personal data!!!

  10. Record in register Strong data security management Requirement of tracking of individual cases Individual data in central registers! Anonymous data in central registers! Danger of misuse of the sensitive data

  11. Strong data security management Requirement of tracking of individual cases Individual data in central registers! Record in register Anonymous data in central registers! Danger of misuse of the sensitive data

  12. Strong data security management Requirement of tracking of individual cases Individual data in central registers! Record in register Anonymous data in central registers! Danger of misuse of the sensitive data

  13. Strong data security management Requirement of tracking of individual cases Individual data in central registers! Record in register Anonymous data in central registers! Danger of misuse of the sensitive data

  14. Strong data security management Requirement of tracking of individual cases Individual data in central registers! Record in register Anonymous data in central registers! Danger of misuse of the sensitive data

  15. Strong data security management Requirement of tracking of individual cases Individual data in central registers! Record in register Anonymous data in central registers! Evidence basedmedicine Statisticalevaluation Danger of misuse of the sensitive data

  16. Strong data security management Requirement of tracking of individual cases Individual data in central registers! Technological solution Anonymous data in central registers! Danger of misuse of the sensitive data

  17. Patient name… (personal ID) Neutral data documentidentifier Patientname… (personal ID) documentidentifier Sensitive personal data Medical record content documentidentifier Neutral data Medical record content

  18. Patientname… (personal ID) Neutral data document identifier Cross connection table Patientname… (personal ID) Reconnectionispermitted to authorisedpersonsonly Sensitive personal data Medicalrecordcontent documentidentifier Neutral data Medical record content Medical record database

  19. Patient name… (personal ID) Patient name… (personal ID) Neutral data documentidentifiers Crossconnectiontables approved Sensitive personal data Requestforinterconnection Medicalrecordcontent A MedicalrecordcontentB documentidentifier documentidentifier Neutral data Neutral data Medicalrecordcontent A MedicalrecordcontentB Medicalrecorddatabase A Medicalrecorddatabase B

  20. documentidentifier Patient name… (personal ID) Neutral data documentidentifiers documentidentifier Neutral data Crossconnectiontables Medicalrecordcontent A documentidentifier Neutral data Medicalrecordcontent A Medicalrecorddatabase A documentidentifier Neutral data Medicalrecordcontent A Medicalrecorddatabase A Neutral data documentidentifier documentidentifier Medicalrecordcontent A Medicalrecorddatabase A Neutral data Neutral data Medicalrecorddatabase A Medicalrecordcontent A MedicalrecordcontentB Medicalrecorddatabase A Medicalrecorddatabase B

  21. ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers

  22. ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers

  23. ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers InformationSharing

  24. ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Change Information Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers Change Information Change Information Change Information InformationSharing

  25. BasicIdentifier of NaturalPerson (BINP) ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations Kofránek ORG - Converter RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers Data C Data B Data A Data Protection AgendaIdentifieres of NaturalPerson (AINP) AgendaIdentifieres of NaturalPerson (AINP)

  26. BasicIdentifier of NaturalPerson (BINP) ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations Kofránek ORG - Converter RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers Requestfor data Data C Data B Data A Data Protection AgendaIdentifieres of NaturalPerson (AINP)

  27. BasicIdentifier of NaturalPerson (BINP) ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations Kofránek ORG - Converter RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers Requestforinterconnection with Data B Data B Data B Data A Data Protection Data C AgendaIdentifieres of NaturalPerson (AINP)

  28. ID Legalpersons, legalentities, public powerauthoritiesetc. Inhabitans Czech Republic eGovernment Architecture ID Registry of Territorial Identification, Addresses and Real Estates Registr y ofPersons Registry ofInhabitans Registry of Rights and Obligations ORG - Converter RightsandObligations Estatesand addresses (accessrightsetc.) Information system of basic registers DistributedInformationHealth Care Systems InformationSharing Data Protection

  29. ArchitektruraeGovernmentu v ČR Není třeba znovu vynalézat kolo! Bezpečné propojení zdravotnických dat bez tvorby velkého bratra je možné!

  30. Děkujeme za pozornost kofranek@gmail.com ondrej.felix@me.com

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