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Keeping stroke a priority

Keeping stroke a priority. Patrick Olszowski Campaigns and Policy Manager Stroke Association. How will we keep stroke a priority?. Time of huge uncertainty and change Acute success – but demographics and lifestyle could mean increased challenge

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Keeping stroke a priority

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  1. Keeping stroke a priority Patrick Olszowski Campaigns and Policy Manager Stroke Association

  2. How will we keep stroke a priority? • Time of huge uncertainty and change • Acute success – but demographics and lifestyle could mean increased challenge • The stroke survivor’s (and carers’) journey continues beyond the stroke pathway • The stroke community exists – but does everyone feel a part of it? • Every disease and patient group is “competing for airspace” ever more locally • Against the backdrop of austerity • At a time when survivors and carers are really struggling to recover

  3. Life After Stroke Campaign All survivors should be enabled to make their best possible recovery – whatever this means to them. 1) To prevent more people having a stroke 2) To help more people make better recoveries, supporting families and carers 3) Supporting any who work in stroke to achieve 1) and 2) more quickly Is about understanding the barriers that stand in the way of 1-3, highlighting (with decision makers and the media) and working collectively to remove them. Tell us what is going on in your area

  4. What survivors want

  5. What 2,200 survivors and carers told us (2012) • 85% stroke survivors say the impact of stroke is not understood • 48% of those receiving support report problems caused by health and social services not working together • 40% of carers didn’t know they were entitled to an assessment. • Almost two thirds (65%) report an increase in household bills and expenses. • The heaviest financial impact was felt among the 40-59 yr age gap

  6. All in stroke = key allies • All who work in stroke – and care about survivors and carers SHOULD be part of the Stroke Community • Do we need to tell a better story about stroke survivorship – what can we learn from cancer and other diseases? • We need to build the biggest possible constituency to improve the lives of both survivors, carers and those working in stroke • Could future reports focus on the barriers facing those working in stroke?

  7. What we have already achieved • CCGOIS –7/60 indicators on stroke (joint with RCP & others) • Ministerial Meetings • Influenced CVDOS (“national stroke strategy will continue”) • APPG, parliamentary engagement and national governments • Joint work on Care and Support bill • Recruited 4000 new campaigners, in under a year

  8. What you can do Join our network, stroke.org.uk/campaigns Tell us what is happening with you – the good, bad & ugly campaigns@stroke.org.uk Check out our position papers and consultation responses at stroke.org.uk/campaigns Want to engage with your MP or a Minister or ask a question in parliament – get in touch – campaigns@stroke.org.uk Help shape our message – join our reference group

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