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Patient Panel

Join Dr. Henry Penn in our Patient Panel to discuss the evolving landscape of rheumatology services. Learn about the importance of patient involvement in healthcare decisions and provide your valuable feedback on the Arthritis Centre's services. We're here to listen and ensure that your experiences shape the changes that are coming. Explore topics such as our inpatient and outpatient activities, training initiatives for future doctors, and ongoing research projects. Together, let's ensure that upcoming changes truly benefit patients in Northwest London.

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Patient Panel

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Presentation Transcript

  1. Patient Panel Dr Henry Penn 30/09/2013

  2. Welcome • Housekeeping • Introductions

  3. Why are we here? • The early reasons • Patient ‘stakeholder’ involvement • Valid decisions on changes and improvements • Improve services • Testing ground for proposed changes

  4. The later reasons • Significant changes are afoot • Trust • PCT/CCG • NW London • Nationally

  5. Frame of Reference for Patient Panel • 1. Feedback on Arthritis Centre services • 2. Engagement with local musculoskeletal charities and patient groups • 3. Discussion/update on NWLH service developments • 4. Discussion/update on NW London service developments with regards to rheumatology

  6. What do we want from you? • 1. Frank feedback on our service. • 2. Engagement with local charities and other musculoskeletal user groups • 3. Help understanding the impact of changes from a patient view • 4. Assistance trying to influence decisions

  7. You can expect from us • To be listened to • To have changes explained • For us to try to use as little jargon as we can manage! • To take your views into consideration • To leave whenever you like!

  8. Rheumatology Specialist Activity • Inpatient – daily input into emergency care • Day unit • Biologics • Cytotoxics • Bisphosphonates • Outpatient • MTX injection • 160 new/month • 1040 FU/month • Specialist clinics • Early RA • Connective tissue disease • Metabolic bone • AnkSpond • Hypermobility • Biologics

  9. Total activity 82% have inflammatory arthritis or CTD 80% of these are on DMARDS Circa 4000 patients

  10. Other things we do • Training • Imperial undergraduates • Trainee doctors (3 registrars, 2 GPs, 4 juniors) • National lectures • Research • Rheumatoid arthritis – 3 projects • Lupus – one trial • Ankylosing spondylitis • Audit • Service improvements • National publications

  11. Changes in Brent • Brent CCG are taking bids to run all of rheumatology outpatients’ services creating the specification by a process called “competitive dialogue” • Process currently on hold due to challenges • It is possible that the work may go to one or more private firm or another hospital trust • It is unclear which doctors will run the service • It will also be predominantly community based • Our trust will bid for the work; so will Imperial and who else?

  12. What shall we do? • Make sure patient voices are heard and influence any changes. • There will be change – but let’s get engaged and make sure it is for the better.

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