“People said to me, ‘What sins have you committed to be cursed with a disabled child?’

2. FAMILY’S PERSPECTIVEONSOCIAL INCLUSION|PauzaginTonsingCentre for Community Initiative (CCI)Churachandpur, Manipurwww.communityinitiate.org

3. “People said to me, ‘What sins have you committed to be cursed with a disabled child?’ and I stay clear of the society to protect myself and my child.”

4. Born as individual but come together and form a group – family, friends, society, community, etc. Forming group means belonging, sharing, participating, adapting, connecting, opportunities, security, etcas we are social being

5. In a society where a person with disabilities is looked upon as a retribution for past misdeeds, how would the person and his family ever have a place in a society? How would they fit all in in one size fits all society?

6. To expect the unconditional love of parents and family from a society which has not been sensitized on the issues of disability, more often than not leads to disappointment and frustration for the parents and family members.

7. It was upto the family to help create an inclusive society for their children.

8. However, some parents of persons with disabilities have a concept that they are to be pitied and need others help, in which case they usually feel “unable” and have a low sense of self-esteem.

9. Yes, the experiences of living with a differently-abled individual is a uniquely subjective one. The family’s role in creating an inclusive society will depend on whether they view disability as an impediment or as avariant of ‘-ability’.

10. With parents viewing disability as a variant of ‘-ability’, they must get the world to try feel and try imagine as parents and family do! Only then can many many more try to do something...

11. I, for one, a doting father of a boy with visual impairment of 7 years ... for all my care and closeness know as good as nothing of what my dear son is going through, and nothing whatsoever about what he wants out of life! But, let me take you to the case of our struggle for including us in the society

12. impediment

14. In 2006, we start visiting other parents of children with disabilities at their home. Then, we began an informal group meeting, who shared and discussed the various hardships we faced in caring our child.

15. The group provided the much needed moral support and confidence where we found comfort in our common experiences.

16. A campaign was begun to make parents break away from their fear of society’s scrutiny and put their child’s needs first. Parents who look disability as an ‘impediment’ are counselled.

17. As there is no service or support where we can seek advice in the District, we empower ourselves by obtaining information through books, internet and random mails to various organisation who gave us valuable advice.

18. Later, it was felt necessary to • make the larger society aware of our experiences. • make people aware of the challenges that we are facing • make them empathize with our circumstances, and not to stigmatize • Make them understand disability, • So we approach CBOs through various means

19. Yes, they were looked upon with sympathy and kind words and words like ‘blessing in disguise’ were used to infer to them. It has impact to some extend though CBOs and civil society has limitation.

20. By 2009, things became less bleak as a result of the campaigns and people became more receptive to the idea that it is a part of their social and moral duty to help persons with disabilities.

21. In 2010, one major break through was the help extended by the church which is the single most powerful institution and most influential in the society.

22. clip

23. As the parents became more aware of the need of a school where we can send our children, by the beginning of 2010, around 10 parents who were genuinely interested in starting such a school began a campaign

24. The traditional perception of disability as opposed to the scientific explanation still persisted within the community and the campaign for starting a school was looked upon with scepticism and ridicule.

25. However, with the support and constant encouragement of intellectuals with liberated thoughts and the District Administration, a school for the ‘malsawmte’ (blessed ones), THE MALSAWM INITIATIVE (A School for Children with Special Needs) was started in 2011.

26. So, i would not be standing here had not God blessed me with Malsawm, And i stand here because of parents of malsawmte who come forward and join hands to fight for their children Due to their effort society today is, to some how, aware of their moral responsibilities towards malsawmte And make malsawmte as one of them.

27. To conclude, People said to the mother that they would take the girl for practising choir while she is not in the school and take her to church on Sunday.

28. “People said to me, ‘What sins have you committed to be cursed with a disabled child?’ and I stay clear of the society to protect myself and my child.”

29. THANK YOU