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Moving from Research Object to Research Partner: Strengthening the Position of the Swedish Disability Movement

This 3-year project by the Swedish Disability Federation aims to establish better relations and strengthen the position of the disability movement in the research debate. The project focuses on social research and the relationship between individuals and society, regardless of diagnosis. It emphasizes the participation of people with disabilities in all stages of research, declaring different roles, and increasing scientific quality. The project also aims to foster cooperation with universities and create a Nordic center for Disability Studies. Through study circles and collaboration with policy makers and residential colleges, the project seeks to empower researchers with disabilities and encourage creative dialogue. The goal is to improve the lives of persons with disabilities through research.

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Moving from Research Object to Research Partner: Strengthening the Position of the Swedish Disability Movement

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  1. From research object to research partner a project run by The Swedish Disability Federation during 3 years (2008-2011) With financial support from the Swedish Inheritance Fund

  2. The Swedish Disability Federation • 39 nation-wide disability organizations • founded in 1942 • a society for everyone • solidarity, equality and participation • UN Convention from 2006 • member of the European Disability Forum • chairman Mrs Ingrid Burman

  3. A need for social research • expressed by the disability movement since the 1960s • no research tradition of its own • first academic chair in Disability Research in 1970 • the first Center for Disability Research in 1988 • research focuses on individual and medicalized issues • project for establishing better relations and strengthening the position in the research debate

  4. Common issues • social research • what makes a situation disabling • the relation between the person and the society • common issues irrespective diagnosis • member organizations work with research based on diagnosis • attempts to involve personas with the disabilities studies (ex. Patient Participation in Research)

  5. Participation in research • criteria for participation in research from the starting-point to implementation • declare different roles • participation from the target group in all stages makes the result more confident • scientific quality is higher if people are involved • tradition of research being separated from the surrounding world • undergraduate training course for co-actors in research projects starting

  6. Cooperation with universities • several seminars • universitycourse - coactorship with a practical part • course at Ph D-level to discuss contemporary methods in participatory research • a Nordic center for Disability Studies in the future? • more presence of researchers with impairment?

  7. persons with impairments are empowered • idea circle for the production of new ideas within social research • researchers are invited - dialogue about needs and ideas for future research • 50 sketches, and more, of relevant research • exposed in public and commented by the research community • making priorities among the topics • job related research questions tend to be the most rated Study circles

  8. cooperation with the folk high schools (residential college for adult studies) • gathered researchers and members from the disability movement to work out criteria for participation in research • policy makers within the disability field • next course will be a training course for potential researchers among persons with disabilities • educated researchers with proper impairments will take part • suitable environment for empowerment and creative dialogue Residential college

  9. The project makes a starting point of a deeper engagement by the Swedish disability movement in research that describe and improve the lives of persons with disabilities • Thank you! • Anne and Emil Conclusions

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