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Enhancements in NACC Data Submission: Insights from the April 2004 Director's Meeting

The NACC Director's Meeting on April 24, 2004, in San Francisco highlighted significant advancements in data submission processes. With the development of the MDS Data Submission System by Duane Beekly, submission times are reduced and error processing is accelerated, garnering positive feedback from users. Key updates included a report on the recent data call that yielded around 71,000 submissions. The Steering Committee's approval for public access to de-identified data promises enhanced collaboration and increased research productivity, with numerous papers and grants in progress.

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Enhancements in NACC Data Submission: Insights from the April 2004 Director's Meeting

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  1. NACC Update ADC Director’s Meeting 24 April 2004 San Francisco

  2. Names and faces • Greta van Susteren • John Ashcroft • Bud Google • Bud Tuggley • Eurasmus B. Draggen

  3. Making Data Submission Easier • MDS Data Submission System • Developed by Duane Beekly • Cuts data submission time • Speeds error check processing • Rave reviews by users • Will be further adapted for NP data • UDS submission system • Coming soon!

  4. 2004 MDS Data Call Deadline was April 16 • ~71,000 total ID’s submitted • Data completely submitted through NACC Web Site • Data completely error checked through NACC Web Site • 28 Centers Submitted On or before deadline. • OHSU was No. 1 • Certification deadline Apr 30: • 6 have certified so far

  5. Database Access • Steering Committee approves “public access” to de-identified MDS/NP data • Publication and User identification schemes under development • Data thru 2002 to be available • Junior investigator data analysis awards • Increase use; Generate science

  6. NACC Collaborative Studies • Huge increase in productivity • 55 paper + abstracts published or submitted • 10 grants submitted using data • Next Competitive submission: TBA • After budget cuts • “Most papers and abstracts” Award • Dr. Bernardino Ghetti, Indiana U.

  7. The Uniform Data Set and the Clinical Task Force • “Never in the field of human conflict was so much owed by so many to so few”…Churchill • “Do not misunderestimate them” …anonymous • NACC’s hard work to begin • Operations Manual • Implementation & Training • Software adaptation • Data quality assurance

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