1 / 36

The European Perfusion Registry : A Work in Progress

The European Perfusion Registry : A Work in Progress. Luc Puis , ECCP Ian Johnson, AACP Else Nygreen , ECCP Pia Sprogøe , ECCP Tim Jones, MB BS, MD, FRCS . Disclaimer. I declare having no conflict of interest. Importance of Registries. To measure is to know. Practice

gabby
Télécharger la présentation

The European Perfusion Registry : A Work in Progress

An Image/Link below is provided (as is) to download presentation Download Policy: Content on the Website is provided to you AS IS for your information and personal use and may not be sold / licensed / shared on other websites without getting consent from its author. Content is provided to you AS IS for your information and personal use only. Download presentation by click this link. While downloading, if for some reason you are not able to download a presentation, the publisher may have deleted the file from their server. During download, if you can't get a presentation, the file might be deleted by the publisher.

E N D

Presentation Transcript

  1. The EuropeanPerfusionRegistry: A Work in Progress Luc Puis, ECCP Ian Johnson, AACP ElseNygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS ICEBP - AMSECT 2011 San Antonio

  2. Disclaimer I declarehavingno conflict of interest ICEBP - AMSECT 2011 San Antonio

  3. Importance of Registries To measure is to know Practice Best Practice ICEBP - AMSECT 2011 San Antonio

  4. Importance of Registries ICEBP - AMSECT 2011 San Antonio

  5. Importance of Registries ICEBP - AMSECT 2011 San Antonio

  6. ExistingRegistries ICEBP - AMSECT 2011 San Antonio

  7. ExistingRegistries ICEBP - AMSECT 2011 San Antonio

  8. ExistingRegistries Whynotadhere? – Several issues • heterogeneous data betweenregistries • descriptiveprocedural data • no risk stratification, nooutcome • cost • noor low number of perfusion parameters in cardiacsurgery databases ICEBP - AMSECT 2011 San Antonio

  9. Setting up a Registry Long and labor-intensive workwhichrequires: • people, thatneed coming together, money • dataset and medium forcollection • motivation and trust to submit data • qualitycontrol and errorreporting Safety of data and privacy issues • statistical processing • publication of results (public/benchmarking) ICEBP - AMSECT 2011 San Antonio

  10. Setting up a Registry To avoid to having all countries to go throughthis: And having to put themtogether later anyway… ICEBP - AMSECT 2011 San Antonio

  11. Setting up the EPR Gatheringpeopletogether: Ian Johnson, AACP ElseNygreen, ECCP Pia Sprogøe, ECCP Tim Jones, MB BS, MD, FRCS Luc Puis, ECCP ICEBP - AMSECT 2011 San Antonio

  12. Ideally… We’re all treating the samepatients… The benefit for the patient is ourcommoncause… ICEBP - AMSECT 2011 San Antonio

  13. Ideally… We’re all treating the samepatients… ICEBP - AMSECT 2011 San Antonio

  14. Ideally… Benefits of suchcollaboration… • largenumber of cases • addedvalueforsurgeons • legion of data submitters • access to extended data forperfusionists • avoidance of double collection • more powerful database BETTER CARE FOR OUR PATIENTS ICEBP - AMSECT 2011 San Antonio

  15. What have we donesofar? Mission Statement ICEBP - AMSECT 2011 San Antonio

  16. What have we donesofar? Mission Statement ICEBP - AMSECT 2011 San Antonio

  17. What have we donesofar? RegisteredCharity – judicial background ICEBP - AMSECT 2011 San Antonio

  18. Whatwillit look like? EACTS AdultCardiacSurgery Database • active plans forweb-based database • static submission dynamicsubmission • (online/upload) • addperfusion parameters to it (samepatients) • participationwouldbefreeforparticipants ICEBP - AMSECT 2011 San Antonio

  19. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry ICEBP - AMSECT 2011 San Antonio

  20. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry • Who • chair, secretary, treasurer • foundingmembers • notrestricted • Tasks • daily management of Charity • funding – financial management • communicationwithparticipants and partners ICEBP - AMSECT 2011 San Antonio

  21. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry • Who • perfusionists, surgeons, anesthetists • statistician • epidemiologist • … • Tasks • dataset • qualitycontrol / errorreporting • statistical processing • publishing of reports ICEBP - AMSECT 2011 San Antonio

  22. Whatstillneeds to bedone… Structure of EuropeanPerfusionRegistry • Who • countries • centers • individuals • NOTrestricted to Europe • Tasks • comply to membership / bylaws • bring in the (correct) data • read reports • changepractice to best practice ICEBP - AMSECT 2011 San Antonio

  23. Next steps… There is still a long way to go… ICEBP - AMSECT 2011 San Antonio

  24. Dataset ICEBP - AMSECT 2011 San Antonio

  25. Dataset What do you want to achieve? Areas of Risk Outcome Bleeding LCOS LOS - … Inflammation Antico OrganInjury Morbidity Transfusion Mortality Identify parameters that have aninfluenceon these areas • heparine • protamine • Hct • Hb • RBC • Plts • FFP • … • … • coating • cardioplegia • hemofilters • open/closed • PSB managmnt • … • … • … • cardioplegia • inotropes • … • … • … • ventilation • ICU • complicat • death • … • … ICEBP - AMSECT 2011 San Antonio

  26. Risk Scores ICEBP - AMSECT 2011 San Antonio

  27. Risk Scores ICEBP - AMSECT 2011 San Antonio

  28. Risk Scores ICEBP - AMSECT 2011 San Antonio

  29. Risk Scores ICEBP - AMSECT 2011 San Antonio

  30. Risk Scores ICEBP - AMSECT 2011 San Antonio

  31. QualityImprovement ICEBP - AMSECT 2011 San Antonio

  32. DendriteClinical Systems Ltd. www.e-dendrite.com ICEBP - AMSECT 2011 San Antonio

  33. DendriteClinical Systems Ltd. www.e-dendrite.com ICEBP - AMSECT 2011 San Antonio

  34. DendriteClinical Systems Ltd. www.e-dendrite.com ICEBP - AMSECT 2011 San Antonio

  35. BelSECT 13th Symposium • September 29th 2012, Brussels • SimulationSessions, September 28th • gathering of three EU simulationgroups • focus on teamtraining, scenario writing and assessment ICEBP - AMSECT 2011 San Antonio

  36. ThankYou ICEBP - AMSECT 2011 San Antonio

More Related