Camden Integrated Digital Record (CIDR): Linking Health and Social Care Data

1. Camden Integrated Digital Record (CIDR)

2. CIDR • Camden Integrated Digital Record (CIDR) • Camden CCG has developed an online record that links health and social care data together, working in partnership with health and social care providers in Camden. This is called the Camden Integrated Digital Record (CIDR) system. • A joined up digital record allows health and social care professionals to view vital information about you at the right time, and place, to provide you with the best possible care.

3. What is an integrated digital record? • The CIDR system currently includes health and social care data from these different sources: • Camden GPs • University College London Hospitals (UCLH) • Royal Free Hospital NHS Foundation Trust (RFH) • Central and North West London NHS Foundation Trust (CNWL) • Camden and Islington Foundation Trust (C&I) • Coordinate My Care (CMC) (part of the Royal Marsden NHS Foundation Trust) • London Borough of Camden (LBC)

4. Benefits • What are the benefits of having an integrated digital record? • There are a number of benefits to linking up health and social care information into an integrated digital record. These include: • Health and social care professionals being able to access the information required to provide optimal care for you. • Potential safety benefits - as health and social care professionals will be more aware of important information such as what prescription medications you are taking etc. • You will not have to repeat information about yourself to multiple different professionals - improving your care experience.

5. CIDR Case Study

6. CIDR Ethel’s test results View University College London Hospital (UCLH) Ethel’s Camden GP

7. CIDR Warfarin and bad reaction to morphine View Royal Free Hospital A&E Medications, allergies and adverse reactions to medications from Ethel’s GP Record

8. CIDR Contact details for Ethel’s care team View Hospital Discharge Team Adult Social Care Royal Free Hospital Ethel’s Home

9. Ethel’s Camden GP Adult Social Care Occupational Therapist details View Ethel receives the care she needs to be safe at home View Ethel's’ community care information Community Care Ethel’s Occupational Therapist

10. Confidentiality and Security • The CIDR system is designed to provide a high level of both confidentiality and security to the information that it holds. This includes the transfer, viewing and storage of all information in a secure environment. • Access to the system and records within this are only provided to approved and authorised users which are validated by their respective organisations. Access is based on their role and responsibility within their respective organisation. • Access is limited to only users who have an approved N3 connection. • Access and use of the CIDR system is auditable in regards to access and usage of the system. The internal audit functions have been developed line with the NHS Care Record Guarantee

11. Confidentiality and Security • Only authorised health and social care professionals are permitted to use the CIDR system. There is a robust process for professionals to be authorised by their organisation before their access is approved. • Staff with permission to use CIDR can only view your record once you have given consent for the approved organisation to do so. • When a care professional views your record they will onlybe able to see information available to support delivering care to you at that time. • All access is strictly monitored to ensure it is appropriate and legitimate. • In emergency cases, where time is limited and pre-defined justifications are met, a care professional may view a record without explicit consent from the individual (e.g. there is clinical urgency and the individual is unconscious).

12. Can I choose not to have an integrated record? • Yes you can. • The CIDR system is designed to support your individual wishes in relation to both the creation of a record and the level of information available. • You can opt out entirely or you can reduce specific information that can be viewed in the system. • If you want to opt out, at any time you can discuss this with you GP practice. • Alternatively, you can speak to your local NHS Trust (e.g. UCLH, RFH, CNWL and C&I) or the Camden Council, to stop specific information from being included.

13. Questions ?

14. Communications • Posters and leaflets in practice, pharmacies, libraries • Slide show and a version of the poster for your practice TV screen • Communications pack for all practices including FAQ’s • CCG website contains information and FAQs for the public. • Patient survey underway • Patient leaflet (currently being tested with patients)

15. Resident feedback • Commissioned community researchers to survey 270 residents across Camden • Asked a series of questions to gather awareness of CIDR, views and opinions on consent and the benefits to integrating records. • Tested the patient leaflet (to be sent to all Camden residents registered with a GP) and have incorporated feedback • In six months will re-survey Camden residents to gauge feedback from public awareness campaign • Following slides snapshot of feedback

16. Base: All respondents (263)

19. Ethel’s Camden GP Adult Social Care Occupational Therapist details View Ethel receives the care she needs to be safe at home View Ethel's’ community care information Community Care Ethel’s Occupational Therapist

20. Where can I go for further information? • There is a CIDR website you can visit for more information: cidrportal.camdenccg.nhs.uk • Camden CCG will publish information about any changes and developments to the CIDR system on the website. • If you can’t find the information you need on the CIDR website, you can use the ‘Feedback’ form on the website to contact the CIDR team at Camden CCG. Or, you can email the team directly: cidr.project@nhs.net

21. Questions ?