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SEER Case Consolidation Study: Design & Objective

SEER Case Consolidation Study: Design & Objective. NAACCR 2009 Annual Conference San Diego, CA May 18, 2009 Lois A. Dickie, CTR Public Health Analyst NCI SEER. Case Consolidation in a Nutshell. Merging multiple documents Best information. Current Consolidation Status.

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SEER Case Consolidation Study: Design & Objective

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  1. SEER Case Consolidation Study:Design & Objective NAACCR 2009 Annual Conference San Diego, CA May 18, 2009 Lois A. Dickie, CTR Public Health Analyst NCI SEER

  2. Case Consolidation in a Nutshell • Merging multiple documents • Best information

  3. Current Consolidation Status • Concept is consistent across SEER • Processes differ • Variations in registry software

  4. Why Case Consolidation? • More documents • Evolution of medicine & patient care • Technology • Educated patients • Registries requesting guidelines • NAACCR Consolidation of Demographic Data Items

  5. The Study Objective • Probability of developing business rules & guidelines. • Dictionary of Standard Terms

  6. Study Design Challenges • Evaluate 17 registries • multiple data management systems • individual processes • How to evaluate information

  7. The Design Overview • Evaluate consolidation processes & business rules by • Questionnaire • Case scenarios

  8. Overview cont’d • Web-based software tool • Data analysis • Recommendations

  9. The Methodology Phase 1- Data Collection • Editing staff will consolidate & provide rationales for changes • Six sites

  10. Phase 1- Data Collection • Data fields are • Site/laterality • Histology/behavior/grade • CS codes • Treatment & date started

  11. Phase 2- Process Assessment • Questionnaire • Editing manager • Process • Data sources • Format

  12. Phase 3- Data Analysis • Questionnaire • Study results

  13. Phase 3- Results & Recommendations • Guidelines • Business rules • Dictionary of standard terminology

  14. When? • 2010

  15. Questions? • dickielo@mail.nih.gov

  16. Case Consolidation Math • 1+1+1+1+1=1

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