inclusion-international

1. www.inclusion-international.org The Right to Decide Inclusion International’s Global Campaign on Decision Making

2. II Global Campaigns 2009 Inclusive Education: Better Education for All 2006 Poverty and People with Intellectual Disabilities 2012 The Right to Live and Be Included in the Community

3. Poverty and disability Global Knowledge The MDG 2015 were used as the frame of analysis for our Report Local Voices II said the MDGs could not be achieved if the voices of people with intellectual disability and their families were not included

4. Inclusive Education Global knowledge Declaration of Salamanca Education for All, The Dakar Goals CRPD Article 24 Local Voices 15 years after Salamanca we still have a long way to go

5. d Living and be included in the Community Global knowledge Article 19 of the Convention On he Rights of Persons with Disabilities (CRPD) Local voices Living and being in the community is about Choice, Support and Inclusion

6. Inclusive Communities = Stronger Communities • The majority of people with intellectual disabilities live at home and do not have choice in where they live. • The major source of support is families • Individuals and their families do not get the support they need and for the most part, community systems continue to exclude people with disabilities. • Transforming communities to be inclusive and ensuring that people with disabilities are included in mainstream programmes are essential for securing the rights of people with intellectual disabilities. To do this, we need to: • Transition from segregated models (i.e. employment, housing, education) to community based models • Build and support self-advocacy groups. • Develop family resource and training programmes and assist families to build and sustain natural supports in the community. • Secure budget allocation for disability supports and inclusion in mainstream budgets.

7. Common Elements Raised the collective Voice of people with intellectual disabilities and their families Identified exclusion, isolation and discrimination Identified strategies to promote inclusion

8. The Right to Decide • Our members tell us: • people with intellectual disabilities aren’t supported to develop decision making skills as they grow; • that families lack the skills and tools to understand how to support their sons and daughters to express themselves and that guardianship is a way to “protect” them; • that communities lack the mechanisms (legal and otherwise) to recognize supported decision making. • Article 12 tells us...

9. CRPD Article 12Equal Recognition before the Law • States Parties reaffirm that persons with disabilities have the right to recognition everywhere as persons before the law. • States Parties shall recognize that persons with disabilities enjoy legal capacity on an equal basis with others in all aspects of life. • States Parties shall take appropriate measures to provide access by persons with disabilities to the support they may require in exercising their legal capacity. • States Parties shall ensure that all measures that relate to the exercise of legal capacity provide for appropriate and effective safeguards to prevent abuse in accordance with international human rights law. Such safeguards shall ensure that measures relating to the exercise of legal capacity respect the rights, will and preferences of the person, are free of conflict of interest and undue influence, are proportional and tailored to the person's circumstances, apply for the shortest time possible and are subject to regular review by a competent, independent and impartial authority or judicial body. The safeguards shall be proportional to the degree to which such measures affect the person's rights and interests. • Subject to the provisions of this article, States Parties shall take all appropriate and effective measures to ensure the equal right of persons with disabilities to own or inherit property, to control their own financial affairs and to have equal access to bank loans, mortgages and other forms of financial credit, and shall ensure that persons with disabilities are not arbitrarily deprived of their property.

10. Objectives Global Campaign • Raising awareness about the impact of the denial of the right to make decisions • Identify models of support for families and individuals that enable people to control their own lives • Explore models of Supported Decision Making • Provide tools to families and individuals and their organizations

11. Campaign will explore how to: • Support people to make choices in their everyday life about where and with whom they live • Provide support to families in planning • Promote person centered planning • Secure access to supported decision making.

12. Methodology • Building on previous Global Campaigns knowledge and findings • Building shared Knowledge on Art. 12 • Building the knowledge in II´s members • Understanding and sharing global knowledge • Discussion groups with Families (Discussion Guide & Background Paper) • Discussion groups with Self-Advocates (Discussion Guide & Background Paper) • Case Studies of SDM Models • Mapping global initiatives on Article 12

13. What can you do? • Share your stories and examples • Host a discussion group with families in your community • Host a discussion group with self-advocates in your community • Speak up in our consultations

14. What Next? • II will develop and launch a global report on decision-making. • Be part of the campaign and join us at our World Congress in Kenya to be part of the launch.

17. For More Information: www.inclusion-international.org