Centers for Disease Control and Prevention National Center on Birth Defects and Developmental Disabilities Autism Spectrum DisordersCenters for Disease Control and Prevention OSEP December 8, 2008
CDC Programs Specific to ASDs • Surveillance/Monitoring—Address questions on the prevalence/trends • Epidemiologic Research: Examine risk/protective factors • Prevention/Translation of Research— “Learn the Signs. Act Early.”
CDC Establishing a Network to Monitor ASDs and other DDs in the United States Washington Maine Montana Vermont Minnesota North Dakota Michigan New Hampshire Oregon Wisconsin Massachusetts South Dakota Idaho New York Wyoming Michigan Rhode Island Connecticut Pennsylvania Iowa Nebraska New Jersey Nevada Ohio DC Indiana Delaware Illinois Utah Maryland West Virginia Colorado California Virginia Kansas Missouri Kentucky North Carolina Tennessee Arizona Oklahoma Arkansas South Carolina New Mexico Mississippi Georgia Alabama Texas Florida Louisiana Alaska U.S. Virgin Islands CDC 11 ADDM Sites 2006-2010 (10+CDC) 16 ADDM Sites 2001-2006 (15 +CDC) Hawaii Puerto Rico Guam +
Surveillance Year 2002(8-year-olds born in 1994) • Sites represented approximately 10% of US 8-year-old children - 2,685 children were identified with an ASD. • The average prevalence across all sites was very similar to 2000 at 6.6 per 1,000. • There was also a range 3.3 (AL) to 10.6 (NJ) per 1,000 children Between 1:100 and 1:300 with an average of 1:150 children with ASD.
Study to Explore Early Development (SEED) Multi-state collaborative study to help identify factors that may put children at risk for autism spectrum disorders and other developmental disabilities. California, Colorado, Georgia, Maryland, North Carolina, Pennsylvania Approximately 2,700 children, ages 2 to 5, and their parents will be part of this study.
Research Areas Included • Infection and immune function, including autoimmunity • Reproductive and hormonal features • Gastrointestinal features • Genetic features • Investigation of the broader ASD phenotype • Sociodemographic characteristics • Substance use, hospitalizations and injuries, sleep disorders, and mercury exposure
Parent Education CampaignDevelopmental milestones and early warning signs of delay Every child should meet their full potential.
Learn the Signs.Act Early. Parent education campaign about developmental milestones and warning signs of delay
Campaign Objectives • Increase AWARENESS of developmental milestones and early warning signs • Increase KNOWLEDGE in the benefits of early action and early intervention • Increase parent-provider DIALOGUE on the topic of developmental milestones and disorders • Increase EARLY ACTION on childhood developmental disorders
Target Audiences • Health Care Professionals (HCPs) • Pediatricians, family physicians, physician assistants, nurse practitioners, nurses, and others • Parents of Young Children • Ages 4 and younger • Early Educators (EEs) • Preschool teachers, day care providers, and others
MobilizationAct Early Catalyst in helping parents and professionals to learn the signs and act early
Act Early Regional Summits Bringing together key stakeholders in states to improve early identification and early intervention.
2007-2008 Act Early Regional Summits Region V – “Creating Medical Home Solutions for Individuals with Autism,” December 2007 Region VII Summit (Iowa, Kansas, Missouri and Nebraska) - Kansas City, MO February 2008 Region VI Summit (Arkansas, New Mexico, Louisiana, Oklahoma, and Texas) - Albuquerque, NM March 2008
Proposed outcomes of the Act Early Regional Summits • Increase awareness of Learn the Signs. Act Early, campaign and its impact in target regions • Develop common understanding among stakeholders of opportunities, challenges and barriers to early identification and diagnosis • Enhancing partnerships at the federal level (CDC, HRSA, AUCD)
Proposed outcomes of Regional Summits (continued) • Develop state teams to initiate and/or enhance state wide early identification, diagnosis and service provision and coordination for families with ASD • Create national web-based forum to disseminate promising evidence-based practices for stakeholders to use to develop innovative approaches in their states
Future plansAct Early activities • AUCD and HRSA • 2009 Act Early Regional Summits • AUCD • Act Early fellow • Collaborative Research Awards • Research Topics of Interest – Developmental Screening
Questions? www.cdc.gov/actearly www.cdc.gov/autism email@example.com The findings and conclusions in this presentation are those of the author and should not be construed to represent any agency determination or policy.