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Please use the chart paper to share your thoughts on the following question:. Consider your work with families experiencing abuse and neglect--- what challenges do you encounter?. Meeting the Requirements of CAPTA and IDEA Implications for Part C Early Intervention. Marian Jarrett, Ed.D.
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Please use the chart paper to share your thoughts on the following question: Consider your work with families experiencing abuse and neglect--- what challenges do you encounter?
Meeting the Requirements of CAPTA and IDEAImplications for Part C Early Intervention Marian Jarrett, Ed.D. Karin Spencer, MA George Washington University
Session Agenda • Requirements of CAPTA and IDEA • Challenges for Early Intervention • Abuse and Neglect of Infants and Toddlers • Red Flags • Assessment • Intervention Strategies
CHILD ABUSE AND NEGLECT:DEVELOPMENTAL CONSEQUENCES • Difficulty forming relationships in preschool and early adolescence • Lower levels of school achievement, especially in adolescence • More likely to require special education—72% by 3rd grade • More behavior problems • More likely to use drugs and alcohol
CAPTA • The Keeping Children Safe Act of 2003 amended the Child Abuse Prevention and Treatment Act (CAPTA) • As of July 1, 2004, referral required “of a child under the age of 3 who is involved in a substantiated case of child abuse or neglect to early intervention services funded under Part C of the Individuals with Disabilities Education Act (Sec.106(b)(A)(xxi)).
PART C of IDEA 2004 SEC. 637.State Application and Assurances “. . . require the referral for early intervention services under this part of a child under the age of 3 who— (A) Is involved in a substantiated case of child abuse or neglect; or (B) Is identified as affected by illegal substance abuse, or withdrawal symptoms resulting from prenatal drug exposure;”
IMPORTANCE OF CAPTA • Children reported to CPS and/or in foster care experience many developmental delays – including social-emotional delays. • Infants and toddlers referred to CPS need access to services provided by early intervention system
THE INTENTION OF THE LAW • Every child referred under CAPTA shall be screened by a Part C provider or designated primary referral source to determine if a referral for an evaluation for EI service is warranted. • All children are to be screened, but not all will be referred. (IDEA Infant and Toddler Coordinators Association (ITCA), 2004)
CHALLENGESPredicted Increases in Part C • Before CAPTA, 7% of infants and toddlers in Part C were also in Child Welfare System • After CAPTA, predictions: • 70% increase in referrals • 20-30% increase in enrollment What is actually happening??
THE CULTURE OF THE CHILD WELFARE SYSTEM • Life and death responsibilities • Staff shortages/high caseloads • Inadequate supervision • Public expectation of a punitive system of accountability • Risk of violence • Adversarial relationships with families • Voluntary or mandated services (Cohen, 2005)
THE CULTURE OF THE EARLY INTERVENTION SYSTEM • Each state defines eligibility criteria • Comprehensive, multidisciplinary evaluations and intervention • Meet developmental needs of child and needs of the family • Family centered services based on the IFSP • Services are voluntary
NEED FOR COLLABORATION BETWEEN EI & CW • Clear definition of roles and responsibilities • Development of trust • Explanation of EI and CW to families • Joint visits to families • Procedures to follow when families refuse services (Cohen, 2005)
CHALLENGES TO EARLY INTERVENTION • Increased workload • Assessments to identify social emotional needs • Interventions with children and parents • Enhance ability to address parental issues that affect infant mental health
CAPTA CHALLENGES TO CHILD WELFARE • Work to educate families to accept referral to EI • CW does not know the potential of EI • Limited staff available/capacity to address developmental problems • Supervisors do not want to add another mandate to workers’ job • Confidentiality issues
CHALLENGES OF WORKING WITH PARENTS • Majority living in poverty • Poor housing conditions • Parental substance abuse and mental health issues are common • Mothers in abusive relationships • Multi-stressed, chaotic and unstable families
CHALLENGES OF WORKING WITH PARENTS • Inadequate basic care giving skills • Lack structure, limits and routines • Many lack knowledge of typical child development, behaviors and needs • Discipline is punitive in nature – expression of parent’s frustration
CHALLENGES OF WORKING WITH PARENTS • Lack formal and informal supports • Difficulty trusting others and forming healthy relationships • History of poor relationships and experiences with other “helping professionals” • Generational cycle of abuse • Overwhelmed by their own needs
EVERYDAY IN AMERICA • 4 children are killed by abuse or neglect • 2,383 children are confirmed as abused or neglected. (Children’s Defense Fund, 2007)
Everyday In America (Children’s Defense Fund, 2007)
Virginia’s Children Child Population 1,789,782 Living in Poverty 238,312 Child A&N Victims 6,959 (CLASP, 2006)
ABUSE AND NEGLECT AND DEVELOPMENTAL DISABILITIES • Children who experience abuse and neglect are at high risk for • developmental delays • psychological, behavioral and health problems • Social emotional development
ABUSE AND NEGLECT AND DEVELOPMENTAL DISABILITES 53% of all children 3-24 months whose families were investigated for maltreatment were classified as high risk for developmental delay or neurological impairment.
MALTREATED INFANTS AND TODDLERS • Infants represent ~5% of the children in the US and 10% of all child maltreatment victims. (ACF, 2005). • Infants and toddlers most likely to experience recurrence of maltreatment • Child victims with a disability-- over 50% more likely to experience recurrence maltreatment
INFANTS AND TODDLERS IN FOSTER CARE • 80% with prenatal drug exposure • 40% born low birthweight/premature • Many with acute and chronic health problems • More than 50% have developmental delays or disabilities; few linked to EI • One-third of infants discharged will re-enter the child welfare system
THE BRAIN AND EMOTIONAL DEVELOPMENT • Infants need sensitive, responsive care for parts of brain that control emotions to develop properly • Caregivers effectively manage baby’s emotional states • Baby develops neurological and emotional foundations • Enables baby to gradually learn to regulate emotions on her own
ASSOCIATED FACTORS • Factors associated with abuse and neglect contribute to developmental problems • Poverty • Poor nutrition • Lack of prenatal and medical care • Substance abuse (Shonkoff & Phillips, 2000)
CONSISTENT, RESPONSIVE CARE NEEDED But - some parents/caregivers: • Reject bids for emotional/physical closeness • Are punitive and abusive • Suffer from depression • Abuse drugs • Are overwhelmed by meeting own needs and need of their children
MENTAL HEALTHIS… • The successful performance of mental function, resulting in: • Productive activities • Fulfilling relationships • Ability to adapt to change and to cope with adversity… • Mental health is the springboard of thinking and communication skills, learning, emotional growth, resilience, and self esteem.
INFANT MENTAL HEALTH IS… • The developing capacity to experience, regulate and express emotions • Form close and secure interpersonal relationships • Explore the environment and learn • In the context of family, community and cultural expectations for young children • Synonymous with healthy social emotional development (Hunter, 2006: Adapted from Zero to Three)
SOCIAL EMOTIONALRED FLAGS Behavioral responses to stress and trauma of abuse and neglect • Anger and rage • Anxiety and hyper vigilance • Emotional shut down • Bodily reactions
SOCIAL EMOTIONAL RED FLAGS • Chronic sleeping, feeding problems • Excessive fussiness, crying • Unusually difficult to be consoled • Minimal interest in social interaction • Avoids eye contact and physical closeness • Does not turn to familiar adult for comfort • Unable to comfort or console self
SOCIAL-EMOTIONAL ASSESSMENTS • Hawaii Early Learning Profile (HELP) • Ages & Stages Questionnaire: Social-Emotional (ASQ:SE) • Brief Infant-Toddler Social Emotional Assessment (BITSEA) • Infant-Toddler Social Emotional Assessment (ITSEA) • The Ounce Scale, Social & Emotional Development
SOCIAL EMOTIONAL ASSESSMENTS • Early Coping Inventory • Devereux Early Childhood Assessment (DECA) • Vineland SEEC: Vineland Social- Emotional Early Childhood Scale • The Functional Emotional Assessment Scale (Greenspan & DeGangi)
INTERVENTIONSThings to remember... • Build relationships over time • Introduce self, program, purpose • Review confidentiality policy • Take cues from parents • Keep visits and be on time • Basic needs come first
INTERVENTIONSFostering resilience • Establish and facilitate caring relationships • Communicate high expectations • Provide opportunities for participation
INTERVENTIONSHome Visit Tips • Relate to the parent first • Avoid bonding directly with the child • Ask open ended questions • Ask about pregnancy, infancy and parenthood • Avoid making too many suggestions • Listen, listen, listen
INTERVENTIONSEnhancing parent-child relationships • Relationships change relationships-use the parallel process • Parent’s experiences as a child • Notice and comment on parental, child and relationship strengths • Use natural environment • Incorporate activities that involve interaction • Dispel myths
INTERVENTIONSStrategies • Offer developmental guidance • Celebrate milestones • Speak for the baby • Develop strategies and supports together
INTERVENTIONSSTRATEGIES • Bringing it back to baby • Being OK with silence • When a family “no shows” • When parents are clearly unable to engage
PART C PROGRAMS AND PROVIDERS CAN… • Provide high quality home visits • Emphasis on Service Coordination • Focus on social-emotional domain • Learn about local Child Welfare system and services • Take care of ourselves as we do this important work
TAKING CARE OF OURSELVES • Be self aware: • How we are is as important as what we do • Beware of burn out • Know our limits • Pay attention to our own feelings • Remember that parents are responsible for the choices they make, not us
INSPIRATIONFROM A PARENT Courage doesn’t always roar. Sometimes courage is the quiet voice at the end of the day saying, “I will try again tomorrow.” -Anonymous-
CONTACT INFORMATION • Marian H. Jarrett, EdD mjarrett@gwu.edu • Karin H. Spencer, MA kspencer@gwu.edu
REFERENCES & RESOURCES Barnett, D. (1997). The effects of early intervention on maltreating parents and their children. In M. J. Guralnick (Ed.), The effectiveness of early intervention (pp. 147-170). Baltimore: Paul H. Brookes. Bono, K. E., Bolzani Dinehart, L. H., Claussen, K. G., Mundy, P. C., & Katz, L. F. (2005). Early intervention with children prenatally exposed to cocaine: Expansion with multiple cohorts. Journal of Early Intervention, 27(4), 268-284. Cohen, E. P. (2005). Building bridges between child welfare and early intervention programs. George Washington University Community Forum, February 11, 2005, Washington, DC.
REFERENCES & RESOURCES Department of Health and Human Services (2005). Child maltreatment 2003: Reports from the states to the National Child Abuse and Neglect Data Systems - national statistics on child abuse and neglect. Washington, DC: U.S. Government Printing Office. Dicker, S., Gordon, E., & New York State Permanent Judicial Commission on Justice for Children (Eds.). (2004). Ensuring the healthy development of infants in foster care: a guide for judges, advocates and child welfare professionals. Washington, DC: Zero To Three. Early Head Start National Resource Center at Zero to Three. (n.d.). In Home visitor's hand book for the Head Start home-based program option. Retrieved from http://www.headstartinfo.org/pdf/EHS-Home-VisitorHdbk.pdf
REFERENCES & RESOURCES Early Identification Project & University of Colorado Health Sciences Center (Eds.). (2003). Interagency collaboration: A guidebook for child welfare and Part C agencies (Vol.). Denver: JFK Partners. Egeland, B., & Erickson, M. F. (2004). Lessons from STEEP: Linking theory, research and practice for the well-being of infants and parents. In A.J. Sameroff, S.C. McDonough & K.L. Rosenblum (Eds.), Treating parent-infant relationship problems: strategies for intervention (pp. 213-242). New York: The Guilford Press. Erickson, M. F., & Kurz-Riemer, K. (1999). Infants, toddlers and families: A framework for support and intervention. New York: The Guilford Press.
REFERENCES & RESOURCES Hawley, T., & Gunner, M. (2000). Starting smart: How early experiences affect brain development (2nd ed.). Washington, DC: Ounce of Prevention Fund and Zero to Three. Lippitt, J. A. (2005). Implementing referrals of abused or neglected children to EI: The MECLI. George Washington University Community Forum, February 11, 2005, Washington, DC. Jaudes, P. K., & Shapiro, L. D. (1999). Child abuse and developmental disabilities. In J. A. Silver, B. J. Amster & T. Haecker (Eds.), Young children in foster care: A guide for professionals (pp. 213-234). Baltimore: Paul H. Brookes. Ounce of Prevention & ZERO TO THREE. (1998). Ready to succeed: The lasting effects of early relationships. Authors.
REFERENCES & RESOURCES Pawl, J. H. (1995). The therapeutic relationship as human connectedness: Being held in another's mind. Zero To Three, 15(4), 1-5. Rosenberg, S., & Robinson, C. (2003). Is Part C ready for substantiated abuse and neglect? Zero to Three, 24(2), 45-47. Sameroff, A. J., McDonough, S. C., & Rosenblum, K. L. (Eds.). (2004). Treating parent-infant relationship problems: Strategies for intervention. New York: The Guilford Press. Shonkoff, J. P., & Phillips, D. A. (Eds.). (2000). From neurons to neighborhoods: The science of early childhood development. Washington, DC: National Academy Press. ZERO TO THREE Infant Mental Health Resource Center. (n.d.). About mental health. Retrieved October 4, 2005, from http://www.zerotothree.org/Search/index2.cfm