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From Surviving to Thriving: An Issue of Civil Rights

From Surviving to Thriving: An Issue of Civil Rights. Springfield Union – March 1970. Pottstown Mecury – 1972. Willowbrook. Video. Charactistics of Total Institutions. Ervin Goffman. Characteristics. Encompasses ones entire being Undercuts individuality Disregards personal dignity

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From Surviving to Thriving: An Issue of Civil Rights

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  1. From Surviving to Thriving:An Issue of Civil Rights

  2. Springfield Union – March 1970 • .

  3. Pottstown Mecury – 1972 .

  4. Willowbrook • Video

  5. Charactistics of Total Institutions Ervin Goffman

  6. Characteristics • Encompasses ones entire being • Undercuts individuality • Disregards personal dignity • Subjects person to regimented pattern of life • Little connection with ones own desires or inclination • Is inescapable

  7. Building “c” Belchertown

  8. Day Hall Door

  9. Another day in Purgatory

  10. Women’s Residence

  11. The Participant World • Individual comes into the total institution with established routines, rhythms, and expectations that no longer will work • Great unease, discomfort, mis-trust, etc. may often be present • A real loss of the sense of self may be very present • Forced enculturation to the demands and expectations of the institution may be very punishing • Loss of personal identity, possessions of importance, etc. • Institutional symbols may replace personal possessions • “Escape” from the institution may be correlated with a sense that routines and rhythms may be restored

  12. Participant World, Con’t • Institutional Authority • First • Any staff member has the authority to direct, discipline, any participant • Second • Authority or correction is directed towards a great number of items, and judgments not consistent with rules • Third • Misbehaviors in one sphere of life are held against a person in another sphere

  13. Characteristically a Privilege System • “House Rules” are common • Small number of defined rewards are held out in exchange for obedience • May result in obsessive behavior to get the reward • E.g. – cigarettes, internet time, food etc. • System may include punishment/consequences • E.g. for breaking the rules: withdrawal of some privilege

  14. Privilege System con’t • Privileges and punishment may be an organizing principal of the institution • Moving to more independence may be directly related to compliance with the privilege system • Compliance with the privilege system often will cross over between spheres of life which in the real world are separated

  15. Abuse at Texas Institutions is Beyond Fight Club – NPR - 2009 six staff members have been charged with taking part in staging what have been called human cockfights

  16. Judge Rotenberg Center • Video • Published on May 9, 2012

  17. Proposed Ban of Electrical Stimulation Devices An Overdue Step Forward for Dignity and Respect for People with Disabilities Posted on May 19, 2016 by The Arc By: Nicole Jorwic, Director of Rights Policy

  18. Shameless Plug

  19. Full Participation People able to live a typical life

  20. Vermont Services are About Community Remain focused on the individual Typical and empowered lives Awareness of the need to avoid models that align with the charactistics of a total institution

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