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Comprehensive Data Management for HIV/AIDS Care and Treatment Programs

This training module provides a detailed overview of data management related to HIV/AIDS care and treatment. It covers the critical events and indicators in HIV care, data collection procedures, and effective reporting mechanisms. Participants will learn about possible scenarios, routine data sources, and essential data collection tools tailored for different patient statuses, such as those newly diagnosed, receiving treatment, or lost to follow-up. The aim is to enhance understanding and improve data-driven decision-making in HIV care and treatment programs.

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Comprehensive Data Management for HIV/AIDS Care and Treatment Programs

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  1. Data Management for HIV/AIDS Programmes Data Management for HIV Care and Treatment Training Materials – Module 3 Unit 5

  2. Objectives • Describe the possible events in HIV care and treatment service • To understand HIV care and treatment indicators and data elements, routine data sources, data collection procedures, data flow and reporting needs • To understand data collection and reporting tools for care and treatment Module 3 Unit 5: Data Collection Care and Treatment

  3. Introduction • There are several possible scenarios that can occur in care and treatment • Need to be captured in data collection as they contribute to the data elements and indicators Module 3 Unit 5: Data Collection Care and Treatment

  4. Module 3 Unit 5: Data Collection Care and Treatment

  5. Key Possible Scenarios in Care and Treatment • Entry • Confirmed Positive • PMTCT • VCT • TB Clinic • OPD • IPD • Others • Transfer In • Not on ART- Join pre ART Group • On ART- Continue with ART • Assessment for ART Eligibilty • Not Eligible • Eligible Module 3 Unit 5: Data Collection Care and Treatment

  6. Key Possible Scenarios in Care and Treatment • Not Eligible • Services • Follow up for eligibilty reassessment • Cotrimoxazole initiation • Periodic TB Assessment • Outcomes • Continue with follow up • Transfer out • Lost to follow up • Dead Module 3 Unit 5: Data Collection Care and Treatment

  7. Key Possible Scenarios in Care and Treatment • Eligible • Assessment for adherence to CTX and ART • Start ART • Drugs • Continue on original first line • Substitute to alternative first line(multiple substitution possible) • Switch to second line of higher drug • Substitute within second line • Retention • Continue with therapy • Interrupt Treatment • Stop and restart (due to side effects) • Lost to follow up • Transfer Out • Dead • Adherence • Adherence to ARVs • Adherence to CTX Module 3 Unit 5: Data Collection Care and Treatment

  8. Key Possible Scenarios in Care and Treatment • Eligible • Not Started on ART • Not Ready • Drugs not available • Too sick • Other Module 3 Unit 5: Data Collection Care and Treatment

  9. Data Management for Care & Treatment • Overview of Indicators • Ten indicators [# HIV03-01, to # HIV03-10] • 71 data elements [Codes HV03-01 to -71] • 56 reportable data element • 18 calculated data elements • Routine Data Sources • PreART Register • ART Monthly Register • C&T Activity Register • Nutrition Register • Data Collection Procedures • Data collected from the CCC • Collation may be necessary for big facilities before aggregation • Data Flow and Reporting Needs • 53 data elements at facility level • 19 summaries at district (upwards) Module 3 Unit 5: Data Collection Care and Treatment

  10. Data Collection Tools-Changes • Pre ART Register • Unique number has MFL prefix e.g. 11740-00001 • Extra columns for TB status data added • Columns on prior pregnacies and their outcomes including HIV exposed infant numbers if any • Quartely follow-up columns on • CD4/WHO staging, • CTX/TB status • Patient status i.e. Lost, dead, etc • ART Monthly Register • Unique number has MFL prefix • Extra columns for pregnancy (ies) while on ART • Columns (ab) to (bk) from months 25th-48th month. The upper part of the cell is for month 1st-24th while the lower part is for 25th-48th month Module 3 Unit 5: Data Collection Care and Treatment

  11. Data Collection Tools-Changes • Monthly Summary Sheet • Replaced with the coded facility reporting form with data elements HV03-01-HV03-55 • Summary Sheet -ART Cohort • Added rows on: • Fraction CD4 < 100 (of adults with available CD4 at baseline) • Fraction with CD4% < 15% (of children <5 with available CD4 at baseline) • Dropped row on: • Number of persons who picked up ARVs each month for 6 months • Activity Sheet & Tally Sheet are new tools Module 3 Unit 5: Data Collection Care and Treatment

  12. Thank you Module 3 Unit 5: Data Collection Care and Treatment

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