Data Management for HIV/AIDS Programmes

1. Data Management for HIV/AIDS Programmes Data Management for HIV Care and Treatment Training Materials – Module 3 Unit 5

2. Objectives • Describe the possible events in HIV care and treatment service • To understand HIV care and treatment indicators and data elements, routine data sources, data collection procedures, data flow and reporting needs • To understand data collection and reporting tools for care and treatment Module 3 Unit 5: Data Collection Care and Treatment

3. Introduction • There are several possible scenarios that can occur in care and treatment • Need to be captured in data collection as they contribute to the data elements and indicators Module 3 Unit 5: Data Collection Care and Treatment

4. Module 3 Unit 5: Data Collection Care and Treatment

5. Key Possible Scenarios in Care and Treatment • Entry • Confirmed Positive • PMTCT • VCT • TB Clinic • OPD • IPD • Others • Transfer In • Not on ART- Join pre ART Group • On ART- Continue with ART • Assessment for ART Eligibilty • Not Eligible • Eligible Module 3 Unit 5: Data Collection Care and Treatment

6. Key Possible Scenarios in Care and Treatment • Not Eligible • Services • Follow up for eligibilty reassessment • Cotrimoxazole initiation • Periodic TB Assessment • Outcomes • Continue with follow up • Transfer out • Lost to follow up • Dead Module 3 Unit 5: Data Collection Care and Treatment

7. Key Possible Scenarios in Care and Treatment • Eligible • Assessment for adherence to CTX and ART • Start ART • Drugs • Continue on original first line • Substitute to alternative first line(multiple substitution possible) • Switch to second line of higher drug • Substitute within second line • Retention • Continue with therapy • Interrupt Treatment • Stop and restart (due to side effects) • Lost to follow up • Transfer Out • Dead • Adherence • Adherence to ARVs • Adherence to CTX Module 3 Unit 5: Data Collection Care and Treatment

8. Key Possible Scenarios in Care and Treatment • Eligible • Not Started on ART • Not Ready • Drugs not available • Too sick • Other Module 3 Unit 5: Data Collection Care and Treatment

9. Data Management for Care & Treatment • Overview of Indicators • Ten indicators [# HIV03-01, to # HIV03-10] • 71 data elements [Codes HV03-01 to -71] • 56 reportable data element • 18 calculated data elements • Routine Data Sources • PreART Register • ART Monthly Register • C&T Activity Register • Nutrition Register • Data Collection Procedures • Data collected from the CCC • Collation may be necessary for big facilities before aggregation • Data Flow and Reporting Needs • 53 data elements at facility level • 19 summaries at district (upwards) Module 3 Unit 5: Data Collection Care and Treatment

10. Data Collection Tools-Changes • Pre ART Register • Unique number has MFL prefix e.g. 11740-00001 • Extra columns for TB status data added • Columns on prior pregnacies and their outcomes including HIV exposed infant numbers if any • Quartely follow-up columns on • CD4/WHO staging, • CTX/TB status • Patient status i.e. Lost, dead, etc • ART Monthly Register • Unique number has MFL prefix • Extra columns for pregnancy (ies) while on ART • Columns (ab) to (bk) from months 25th-48th month. The upper part of the cell is for month 1st-24th while the lower part is for 25th-48th month Module 3 Unit 5: Data Collection Care and Treatment

11. Data Collection Tools-Changes • Monthly Summary Sheet • Replaced with the coded facility reporting form with data elements HV03-01-HV03-55 • Summary Sheet -ART Cohort • Added rows on: • Fraction CD4 < 100 (of adults with available CD4 at baseline) • Fraction with CD4% < 15% (of children <5 with available CD4 at baseline) • Dropped row on: • Number of persons who picked up ARVs each month for 6 months • Activity Sheet & Tally Sheet are new tools Module 3 Unit 5: Data Collection Care and Treatment

12. Thank you Module 3 Unit 5: Data Collection Care and Treatment