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Transitioning Pediatric to Adult Care: Insights on Patient and Family Impact

Transitioning from pediatric to adult care is a significant journey for patients like Sean, who faces unique challenges due to Wolf-Hirschhorn Syndrome. This process requires meticulous planning, consistent quality care, and strong collaboration among healthcare providers. By focusing on open communication and building trusting relationships, families can ensure their loved ones receive the best possible support. Learn essential strategies for navigating this transition, empowering both patients and families to manage complex medical needs effectively while maintaining sanity through the journey.

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Transitioning Pediatric to Adult Care: Insights on Patient and Family Impact

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Presentation Transcript

  1. PEDIATRIC to ADULT CARE Transitioning Insight to: Patient & Family Impact

  2. Family impact • New career path - CEO of Sean’s life financial stability Be a master planner - coordinating care Assure quality care is constant Focus on a continuum of multifaceted succession/transition plans. Learn how to manage “the System” Forced into the world of medicine Maintain sanity & Go with the Flow!

  3. Family Impact • Transitioning is a constant TRIP • Taking • Responsibility • In • Planning

  4. Who is SEAN ?? • Wolf Hirshhorn Syndrome • Physical and Mental Challenges • Non Verbal

  5. Neuro GI Cardio Immunology Urology Renal Ortho ENT Complex Medical Issues • Requires Collaborative Relationships

  6. Open Communication And Relationship Building Is PARAMOUNT

  7. trip Time to take another

  8. Key ComponentsThe obvious • Comfort level • Collaboration • Teach – share info • Treat with respect • DON’T forget to Listen • Concern for Sean and his families needs

  9. The staff is a reflection of you! • Every person is part of transitioning • Office personnel interaction • Staff interaction with Sean • Staff concern to accommodate Sean and the families needs

  10. The big day • Current PCP accompanied us to the appointment • Consult appointment was scheduled at our convenience • Credit to Dr. Kitty O’Hare • Our NEEDS were MET! • Collaboration occurred between PCP’s after transition

  11. Take away Don’t Do’s • Give guidance - Empower • Pediatrician help research available adult PCP • Collaboration with Pedi & adult PCP before and after transition • Adult PCP - hold a “Get to Know Our Practice” • Keep staff informed – have a “primary go to” person • Be accessible • Do not attempt to discuss this at age 18 • Do not divorce abruptly • Do not shop and drop • Do not dismiss any concern • Don’t hesitate to ask the families opinion • Don’t be afraid to form a relationship

  12. Thanks for listening

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